Mum

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Hi my mum has incurable gall bladder cancer and has had tablet chemo which was stopped 4 weeks ago, she is deteriorating and today has had breathing difficulties and is now in hospital, I have so many emotions as this has happened so quickly, she went in for routine gall bladder surgery on the 12th jan and it was stopped, result in the beginning of March being diagnosed, she had a just in case bag put in last night and now today has deteriorated rapidly, I’m waiting to be able to phone the hospital as when I phoned earlier the doctors were with her, just got so many emotions and trying to be strong for my family, I can’t be there physically til Sunday as I had a COVID exposure notification and am isolating, I’ve been making phone calls to get the equipment she needs in place and speaking to her doctor, as the ambulance was there the district nurse arrived to put in a syringe driver for anti sickness meds, but gave an injection to last while she was going to hospital, she has been able to take her regular medication since Monday, is constantly feeling sick then this afternoon her breathing deteriorated and struggled to phone me, I phoned my son who went round and called 999 on seeing her, I am so frustrated at not being able to help more. My brother arrived so he could give the information to the paramedics, I feel useless I can’t be there for her, and I’m scared that something will happen before I can see her, I just don’t know where else to turn and I feel I’m failing my mum as I’m a care worker out in the community and have cared for many end of life clients but never been this side before of having to arrange care, the emotions involved are frightening, I’m so scared to that I’ll fail my mum in her care, I’ll leave it there as it’s so upsetting xx

  • FormerMember
    FormerMember

    I’ve just joined this forum and have read your post and am so sorry, I realise this is an older post, but want to say I’m thinking of you xx

  • FormerMember
    FormerMember

    Hi. 

    i know this post is a bit older now, but I have just found out that my mum has incurable gall bladder cancer, I just can’t believe how aggressive it is. 

    At the moment my mum is waiting to see an oncologist to start palliative chemo. 

    I hope that you have found peace since this traumatic time. 

  • Thank you for your kind message, sadly mum lost her battle quicker than anyone knew on 18th June, she went quickly and didn't suffer which has been a great relief, 

    I'm thinking of you, I never knew how aggressive gall bladder cancer was, but make sure you use any support available for you too and look after yourself xxx

  • Thank you so much, sadly muml ost her battle on the 18th June, xxx 

  • FormerMember
    FormerMember in reply to MaggieB1973

    How have you managed to cope since loosing mum? 

    Me and my mum are incredibly close and I am only 31 so still very much need my mum. My mum is also young at 55. I am getting married in may and planning a wedding not knowing if your mum will be there (she’s my maid of honour) is awful.

    we also lost my Nana in January last year (mums mum) and that is still quite raw. Plus I don’t have any brothers or sisters to share the grief with. 

  • I'm not going to lie it's been really hard, I like you was really close to my mum, and I miss so much, the little things like not chatting on the phone, and I keep thinking of things I  need to tell her but then remember I cant, I focus on that she didn't suffer, where I live we have a hospice care and they were really good in supporting mum and family can access the support which was invaluable, im sorry for the loss of your nan, my mum was 71, ive coped in a way a wrong way ive worked more, but I've got good friends and my husband Andrew children have been a great support, they are adults, ive also got a 8 1/2 month old grandson and he gets me throw the really bad times,  I really feel for you planning your wedding not knowing whether your mum will be there, its a hard road but there is lots of support our there, and cry and vent if you need to, and  try and enjoy the times you are with your mum, its hard, but it does get easier day by day, xxx