Hi
I’m new to the group and my wife has ‘Double hit’ DBCL. We learnt last week that she has relapsed following CAR-T therapy and this was the latest line of therapy in a 3 year fight with the disease. It’s been a journey of hope and despair. Despair because we’re both in our early fifties and had so much life and dreams to live and hope as we’ve been informed of a trial if strict criteria are met and even then it may only offer a few more months- delaying the inevitable of dying . Our consultant explained that it will be a few short months if the trial cannot be accessed. As a carer I don’t know what to expect and what daily life will be like near the end. Has anyone cared for someone with double hit DBCL and is happy to share their experiences as a carer?
Thanks
Hi Girdy
Sorry for the delayed response but a very warm welcome to you here, I know it is a difficult place to be but I hope that you find all the support possible at this time.
I do not have the experience to be able to answer any of your questions on what to expect, in regards to your Wife having a relapse following CAR-T therapy and her struggle with DBCL over the past 3 years. I do hope in replying to you here that your post is bumped up for others to see, who may have more advice for you.
I notice that you have already received some support in another area of the forum, with links to advice also, and I am hoping that this has been of some help to you.
I do hope that some positive results come from the knowledge of a possible trial, that your wife is able to be a part of that and that this is something that works the miracles that your are both so deserved of.
Thinking of you both and hoping for some positives to come your way.
Lowe'
