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FormerMember
FormerMember
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Hello, 

My partner has terminal cancer (first diagnosed just over two years ago).  He was doing quite well for a while but we are now at the palliative care stage.  I think we mostly cope quite well but he (understandably) gets very frustrated and angry about not being able to do things, and  at the moment it seems like something new every day that he can no longer do.  I actually signed up here a while ago but haven't posted yet. Covid has made things worse as I can't really leave him and now no-one can come in and sit with him while I go out for a bit (not that there is anywhere I can actually go at the moment!).  

I am basically hoping for somewhere to vent when it all gets too much - there's only so much I can expect my family and friends to put up with, and although they are wonderful they don't really "get" it.

Thanks for reading.

  • FormerMember
    FormerMember

    This is indeed the space to vent. 
    if you are at the palliative stage, is the local hospice or community team involved? They can be quite useful.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you for replying!  Yes, the Community Palliative Care Team (who work closely with the hospice) are involved.  They are brilliant and have put our minds at rest about a lot of things.  They seem to have some sort of magic that gets things done very quickly (hospital bed and commode appeared almost instantly!) and have also been liaising with the GP and the haematology nurse.  Having one point of call rather than having to ring endless different people for different things has made life much easier.

  • Hi there, I was where you are now for some time and I know how exhausting, upsetting but often rewarding too it can be. You still have him with you and I’d do anything to be back there even though that must sound crazy. You should make the most of every moment, say all the things you want to say, ask your partner what he wants and just be there for him. It was a difficult time for us but rewarding too in that I was able to make my husband as comfortable as possible and reassure him that I would be there with him all the way. We got even closer during that period if that was possible but it was heartbreaking watching him trying to tie his laces for instance and then eventually having to ask me to do it for him, get in and out of the shower, toilet, etc. Gary had been such a strong, fit, capable man before cancer took all that away. 
    The local Marie Curie nurses were our lifesavers at times but as time went on Gary needed to have long stays in the local Palliative Care Unit of the local hospital for serious pain control. His wish was to die at home but unfortunately we were unable to make this happen in the end because he took very ill in hospital just before he was due to come home (a hospital bed was due to be delivered that day) and he was unable to be moved. 
    The people on this Forum know what you are going through  and can empathise. It is still very fresh in my mind (we lost Gary just over 4 weeks ago). Stay strong and try to look after yourself too (not easy right now I know). This is the place to vent and rant xx 

  • FormerMember
    FormerMember in reply to CD Girl

    Thank you for taking the time to reply.  I am very sorry about your husband.  

  • Hello twitcher77,

    You are very welcome to come here, rant, scream, laugh, cry, share a story, a joke, a reality, anything that will help you free up space for the next steps, whatever they may be.

    I am in or around the forum most days, so if you need an ear, I will be here.

    Take care of both of you, 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • FormerMember
    FormerMember in reply to Lowedal

    Thank you.

  • Hi there.

    I brought my husband home from hospital last night as he is near the end of his life. It was mutual decision between us and his team. He has been so brave this last three and a half years and it’s heartbreaking to see him as he is. He could have stayed in hospital but because of the  COVID situation we would have been apart so home he came. Today with guidance from the local hospice team we were visited by our great niece and nephew aged 9 and 11 who adore their uncle so much. They have exhausted him but we all needed to see each other after such a long time apart. Just having those memories will help us all I’m sure.

    I send my love to you all and wish you the easiest of days to come.

    June x

  • FormerMember
    FormerMember in reply to Will6

    Thank you so much for replying. I agree about the memories - my partner's son came to see him this week (again with guidance from his care team).  He hasn't seen him for a year because of Covid and I think it was the right decision. Best wishes to you and your family.