What arrangements are needed to get someone home for their last days

FormerMember
FormerMember
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Dad was diagnosed with stomach cancer Thursday last week.  His bowels are not working so we have very little time,

He wants to come home from hospital (has been there most of 4 weeks largely isolated due to all these covid visiting restrictions while they tried to treat a blockage).  The cancer was a shock as they cant even fix a stoma the bowel is just not working, so really is a matter of days, weeks reaistically.   In the ward the nursng team are so busy stretched between all the patiens that in his single room even if he rings the bell it can be upto an hour before someoe is free to assist with anything, be it getting back into bed, wanting pain relief, and was only because we were with him when he felt sick yesterdy that we could respond with a vessel quickly for him to be sick in and immediate response from nurse to aspirtae a very boated ad full belly.   

We have his case going to MDT at the hospital this morning, what I am not clear on is all that is invoved with getting patients home and all they need set up at home beforehand works,

The lovely GI Nurse Specialist helping pick up Dads case and move it forward has confirmed yesterday, having taken time to visit Dad that morning, that she will be trying to sort financial support for Dad to have some care for washing etc.   I wasnt here as I was awating my covid test results after a weekend scare - fortunately negative.

But of course there is the matter of hospital bed, no sores mattress, commode, bed table etc, nursing team etc.   How does this all work?  I gather as much that the GP ad District nurse will be involved, do they come and assess the house/room?  Palliative Care have already started adjusting things regarding Dads meds (althogh didnt bother meeting him Monday to see the person, or any discussios with us as yet).  The hospital I understand then passes palliative care to St Margarets Hospice whose community team covers the area my parens live.

What have your experiences been?

The hospital are trying to help get this arranged so Dad can be home this week (its Mum and Dads 56th anniversary at the weekend).   Can everything be put in place so quickly?

  • What have your experiences been?
  • What help can Macmillan or other providers give in the home during these covid days?
  • What advice can you give me of who we may have to contact ourselves (or will the hospital with its networking get these things rollig?)
  • What liquids have other in this position found have helped quench dry thoat, soreness fron the NG tube too?   And just been pleasant relief especially towards the end?

    My Dad is drinking water, and until Monday had been taking cup of tea, occassioal pot of Hartley Jelly, cistard, and some icecream while on TPN and fluids but the Nutritionists decided to try him a day without TPN and put him on Fortisip shakes and unfortunatey some purreed macaroni cheese (3 teaspoons and he felt sick) and this has resulted in his going back to the state he was when admitted with extremely bloated stomach, abdominal cramps,  lots of nasty fluid being produced and draied into his NG tube bag and yesterday he experienced fecal vomiting due to how much liquid had accumulated.  I am hoping this will clear as it has in the past and he will retry at least what he was able to eat and drink that been ok last week - but I fear the fear of pain and this happening again will put him off from trying much more than water.

    I am aware that he will not be able to get much nutriition from oral food if they do take him off TPN, they do appear to be consderig doing so though as with a permaet bowel blockage and no way to drain other than NG tube they feel the TPN is not goig to extend his time for long they have indicated

Currently scrabbling aroud between visits trying to piece this all together

  • Hi

    I don't have any personal experience of preparing for someone with cancer to go home but thought you might find this information from Macmillan on caring for someone at home useful. It tells you, amongst other things, who is responsible for doing what.

    Hopefully you've had some information since posting this but if you still have unanswered questions you could post them in either ask a nurse or ask an information and support adviser, depending on whether the question is medical or not.

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