Overwhelmingly sad

FormerMember
FormerMember
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My husband is currently in hospital due to not being able to eat. Hes on a drip and later will have his 3rd ascites drain in 3 weeks. Hes deteriorated so fast and I'm struggling so much to cope with the overwhelming feelings I'm having. I'm verging on complete panic and I'm so, so scared. He was diagnosed with cholangiocarcinoma in march this year, just prior to lockdown.  He recovered well initially from whipples surgery but then had some setbacks along the way. Surgeons assured us he was cancer free but there had been evidence of cancer in 3 out of 10 lymph nodes. The planned 6 months of chemo was 'sold' to him as a mop up of any stray cells that may be lingering. Just over half way through we discovered the cancer was back . On Monday of this week we were told it had spread to his liver and his lungs and was offered palliative chemo starting next week. The drastic change in him over the past few weeks is terrifying.  I feel that I've  lost him in some ways already and I'm so very very sad. How on earth do people find the strength ? How on earth am I going to live without the man who once gave me so much hope for the future ? How can I stop my thoughts from keeping me awake at night and creeping into my head every time I look at him ? I'm sorry to be so negative.  I'm just really, really scared .

  • FormerMember
    FormerMember

    Hi Jules, 

    I was searching through Macmillan as I have a pre-cancerous condition and I came across your post. I just felt I had to reach out to you. I’m so sorry you are having to go through this cancer is such a cruel disease. I’m not sure if your religious or spiritual but I will be praying for you to have strength over the coming weeks and months. I don’t think your being negative you are fearful who wouldn’t be in this situation. You need the support of the people close to you now and you need to look after yourself so you have the strength to care for your husband. Your husband is lucky to have you by his side. Take care xx 

  • Hi Jules

    I understand the pain you’re going through with your husband, I have and have had the same thoughts, worries, concerns and fears, over the past few weeks. 
    l currently have found an inner strength I didn’t know I had, how long that will be the case I don’t know. I’ve tried to do small moments of kindness to others as a form of tribute to my wife and also to give me a little boost too, when I have been able, I want her to be proud of me. 

    I’m sitting next to her at the moment whilst she sleeps, taking each day as it comes. 

    Sending you nothing but kindness and my thoughts are very much with you too. 

  • FormerMember
    FormerMember in reply to Tattoo

    Hi Jules,

    I totally understand. My husband is due to start his 2nd line chemo next week, as first failed. He has stage 4 stomach cancer with Mets to peritoneum. He’s also had stents fitted recently due to blocked kidney tubes. As each week passes he seems to have another problem and is becoming more poorly. He sleeps a lot now and is so quiet I feel like I’m already on my own sometimes. 
    I grieve for what once was and the life that has been robbed from us (he’s 51 I’m 46).

    Generally I’ve surprised myself at how well I deal with it all, particularly working full time from home still while caring for hubby. But every now and then I feel an overwhelming sense of dread and panic. I feel the same as you, how will I cope without my lovely fella. But I guess the answer is you just have to keep the n keeping on. Life can be so cruel but the days still keep going so I guess we have to as well.

    my thoughts will be with you, post any time, we all know how it is.

    Tattoo, so glad your lovely wife is still with you and you’re able to spend the time with her, just holding her hand and being tigether

    x

  • FormerMember
    FormerMember

    Hi Jules,

    I read your post and it's struck a chord with me. It's all happened to quickly.for you and your feller. It's ruthless and it hits you for 6 every time the doctor.opens their mouth. It only seems to get worse. Similar with my brother. Every time they scan him he has.more cancer. 

    I can empathise with you feeling like you've lost him already. I sometimes feel the same. I can't look at my brother the same. It's disgusting I should allow that into my head. But like you I can't stop it. I just think my baby brother will.die very soon. Morning noon and night it consumes us 

    How will we live without our loved ones? I don't know buy we will find the strength. You know when you look at him and want to cry and you don't. That strength. 

    I feel for you and I hope my words can help. We will get through all of this we will. I'm thinking of you both. 

    Chris