I am currently caring for my husband who had bowel cancer in 2018, surgery and chemo but in February 2019 it returned into his liver and lung. He has had four courses of CAPOX and the last session did not work so he has gone straight onto FOLFIRI which he had in Feb 19 which worked. He has a PICC line and has treatment every two weeks, 6 cycles. He is currently in his second cycle day 5 and cannot do anything but sleep all the time... He wakes to eat and that is it, no interest in doing anything even TV. His appetite is good, in fact he wen downstairs last night at 3.30am andI found him eating cornflakes from a bowl dry saying he was starving! I am really concerned as he seems quite yonderley, spaced out and weak but he won’t let me ring the medics as he fears his treatment will be reduced or stopped! We asked our consultant for an honest thought of survival time span and he said Paul could possibly be in his last year of life but that was only an average. When he stops treatment for a rest he usually only gets about 6 weeks and it starts growing again. Can anyone help and advise or has experienced similar feelings ???? I am feeling very low at the moment.
Hi
I'm sorry to hear everything you and your husband have been going through. It must be very difficult for you as you are concerned about your husband's health but he won't let you ring his hospital team. I understand that he is worried that they will stop his treatment but they might just be able to give him something to help.
You might like to think about joining the bowel cancer, secondary lung cancer and secondary liver cancer groups as this will enable you to ask questions, share experiences and get support from others who will understand exactly what your husband is going through.
To join any or all of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.
I know you don't want to go against your husband's wishes but if he gets worse over the weekend, or you're still worried, then you might need to phone NHS111 to ask their advice if you can't speak to your husband's team at the weekend.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
