What the end looks like..

FormerMember
FormerMember
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My dad is 64 with pancreatic cancer which has spread to his liver, lungs and bowel with mets and ascites in his abdomen.

He currently lives with myself, my husband and our 3 year old daughter. I'm also 33 weeks pregnant. 

The last 4 or 5 days we have seen a massive decline. No energy, cold, not eating, sleeping during the day but not at night but also hiccups! I thought this was a strange one but apparently very common. 

We've had our first palliative care nurse appointment today at the house and they have put him on the slow relief morphine with oral morphine in-between, anti sickness meds to help with the hiccups and laxatives as he hasn't been to the toilet for over a week now. He's eating very little, nothing at all yesterday and a rice pudding today. He is still able to get up and walk about himself but can see he is getting weaker and weaker. I wonder how long he will be able to do that for. 

The palliative care nurse said today that the way he is eating is not sustainable and it's only just dawned on me that's what she said. This was said when I asked whether he could get better or whether this is the start of the end. I came here looking for what sustainable means or looks like. How long people usually have between stopping eating/eating very little to the end. If there is anything else I should be looking out for. 

I thank anyone who replies, I know it must be tough reliving experiences or even sharing current ones you are going through. 

  • FormerMember
    FormerMember

    As you can see, on my bio, my husband is on end of life care atm. It's really hard, a nightmare , but there's lots of supportive help and advice here. I'm no professional but I am currently going through it.

    Take care of yourself Kissing heart

  • FormerMember
    FormerMember

    I'm so sorry to read this and for the living nightmare you are going through.  My mom passed away in February from pancreatic cancer which had spread to the liver.  Your description sounds very familiar.

    My mom ate very little but she had a surge of 'normality' and then it dropped off again.  Her kidneys also packed up so the toxins from that would have sped up her decline.  She had 6 weeks from diagnosis to the end but it was the last three weeks that things changed dramatically.

    You can be frank with the nurses and they will be with you.  I suppose some people don't want to know, I know my dad couldn't have handled the truth at the time so I kind of stepped up for that side of things.

    Here if you want to chat, cry, scream.  PM me if you want to xx

  • FormerMember
    FormerMember in reply to FormerMember

    I'm sorry to hear you lost your mum so quickly :( 

    This is exactly what is happening right now. Last night he had this surge of feeling better? I think it must be because his pain meds had kicked in. He was up a bit more than he has been and was sat up in bed on his laptop an speaking to people on the phone and sounded fine. Is this fairly normal then? I thought it might have meant be wasn't really declining and we just needed to pain under control. 

    The nurses have only been involved for 4 days and I'm so so grateful already. Scared for what's about to come though. 

  • FormerMember
    FormerMember in reply to FormerMember

    I think with my mom she had a 'last act of defiance' a few days before she passed away.  She got up, walked into the kitchen, sat at the table and had something to eat and was chatting away.  Then the next day she went downhill very quickly.  

    Everybody is different.  The nurses said to us that they were surprised at the rapid decline so perhaps your dad will have more time - I do hope so.  

    It is scary, lean on whoever is available, talk to your dad as much as you can.  Once the pump was fitted to my mom she was so deeply sedated we couldn't have any more conversations with her.  We wanted her to stay at home because that's what she wanted but she was so agitated she was at risk of hurting herself so we made the decision that she should go to the hospice.  She went in on the Saturday and passed away on the Sunday evening.  

  • FormerMember
    FormerMember

    Very, very similar to our journey,which unfortunately,just came to a close.

    Sending you love, support and strength X Mandy x