Terminal Diagnosis

FormerMember
FormerMember
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My stepdad has been battling cancer for the last 3 years but we received the devastating news recently that the oncologist predicts that he only has around 3 months to live. 

Throughout his whole cancer journey he has been adamant that he doesn't want to know any test results/diagnoses/prognoses etc so whilst my mum and I are aware of his prognosis, he isn't. He's always been such a positive person and he's no different at the minute. He's back home after a couple of weeks in hospital and he's sticking to his physio routine religiously and keeps talking about getting back on his feet to walk the dog again etc. Mentally for me though that makes things very difficult because it absolutely doesn't feel real at the moment, it really feels like he's on the mend and things will eventually go back to normal. In my head I keep questioning whether it's right to tell him or not, I wouldn't want to destroy his positivity and have him live a miserable last few months, but on the other hand I don't want him to feel like we've betrayed him by leaving it a long time to tell him (which we will have to do at some point). Even things like how he will get paid by work (especially in the current climate) as if he speaks with them they will have the impression that he will be back at work one day whereas in reality there may be different procedures which need to be followed. 

I've never been faced with death before (i.e. I still have all of my grandparents alive etc) so that is something which scares me. I know a lot of the responsibility will naturally fall on my mum but I want to be able to support her all the way through. We have had a care package arranged for us whereby two carers will come four times a day to begin with and I'm hoping that eventually they will be able to support us as well as him. 

I'm open enough to say here that I'm struggling with things, mainly because I can't accept and acknowledge the situation but it is still playing on in the back of my mind all day. I'm also fearful that the longer I am unable to accept the situation, the harder and faster it will hit me when things start to deteriorate. I did speak with one of the Macmillan nurses over the phone this morning which was nice to be able to talk to someone who can offer direct support, and she mentioned this online community so I wanted to get involved and hopefully connect with people who are facing or have faced similar situations. 

  • FormerMember
    FormerMember

    My mother was in the group of people who really did not want to know her prognosis nor talk about it. In fact, for much of her battle with cancer she was pretty much in denial about the eventual outcome which we were told would eventually be terminal from day one. Only when she was in the last few weeks of her life did I think she accepted what was happening and that was simply due to her loss of physical functions. 

    Although I would have loved to talk to my mother about what was happening and going to happen, I realize now that even if I had at the time, it still would have been mostly for my benefit and not hers. I think it is natural to want to reach out to our loved ones and make sure they are prepared for what is to come but I think it is also natural for them to want to live in the moment and not face reality. Now a year and a half past, I think it was the right decision to let my mother live the way she wanted to and not how I wanted her to.

    I too hadn't been exposed to death and had all my grandparents at the time of my mother's death. Since then, I have lost a close friend and one of my grandparents. I feel like I am very familiar with it now. Everyone processes grief differently. For me, I think I mourned for my mother more when she was still alive than after her death. I had two and a half years of mourning and knowing that she was going to leave me way too young and miss out on the lives of my children who are still fairly young. Immediately after she was gone, I mostly felt relief that this ordeal was over and she was no longer suffering from her cancer. Since that time, I still think of her everyday and occasionally those thoughts are sad but they have mellowed with time. But all in all, I mourned for her more before she died. 

    I would just like to add that I wouldn't worry so much on dealing with everything that needs to be done after someone dies. There isn't an instruction manual that I have ever seen but it was pretty much straight forward and we did things as they became apparent to us or to those my mother was involved with. Certificates were mailed off, paperwork signed and such. I thought it would be a lot harder than it was.

  • My husband doesn't want to know his prognosis either although he knows that I know. I respect that and love that he's making plans way beyond the time we have. The alternative would be planning his funeral and a future that he wasn't in. I understand your concern about not being prepared for his passing but I'm sure it will hit me like a truck anyway. I was advised not to mourn until you have to. Guess there isn't a right way to cope but I hope you find yours xx