I sometimes see posts saying not sure how long ? when might it happen ?how will I know ? months, weeks or days ? I am trying to hold on to my worry from this at the moment.
My partner took a big dip down, is nearing end of life and tumours in skull leading to visual and balance issues and then incredible sleepiness and either in a chair or bed for about a week He was thinking he had a couple of days and the hospice team increased their alertness to us.I have been on tenterhooks (whatever they are ? ) and not sleeping for more than an hour at a time as on sleep / coma / death watch.
Then after a week - he has rallied a bit and is alert and perky. Having put his sons and siblings and their partners on alert for a 'round the bedside dying scene' and then he is up cracking jokes with them, having to apologise for putting them on alert.
I am so pleased we might get a bit longer but the suspense and managing the uncertainty is immense. Made more acute that his son gets married in two weeks time. I am hoping that is keeping him going.
No one can know how long, or when - so holding on tight and remembering to breath is keeping me going and knowing that my job is to just hold on and accept the uncertainty.
A big hello and tipping my hat to anyone else in this boat.
