Creating a checklist

FormerMember
FormerMember
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Hello good people. I have been directed to this group by another member.

Briefly my situation is this, a dear friend is can see the end of her journey and I, along with others are trying to make sure she has all the boxes checked. She is a single women in her early 50's with a 14  yo boy and a 20 yo girl. She shares care of her boy with his father. Unfortunately he has been diagnosed with dementia and so caring for his son will become a factor for him. She has made a will, has appointed guardians for her son, is mortgage free although half the house is owned by her ex till her boy's 18th. She has been told to expect 6 months and is still working as she loves her job working in schools with children that have spectrum disorders. When we spoke recently she had not arranged any power of attorney for her, so this is the kind of thing that needs to be on the list. I am not going to be doing these things for her, there are experts, solicitors etc that can do this but we need to make sure we ask the question. She has brain tumours.

I can offer some help, I had cancer 10 years ago and spent 2 months in a hospice having end of life care after surgery,chemo and radio, but I survived it. I now have surgery every 3 months since then and I can tell you I think I am the luckiest person alive, I lead a full life and happy life with just a couple of days out being waited on by pretty young people, everything checked, and free tea and sandwich... how lucky am I. So my journey has given me a unique insight. I have laid on a bed with only palliative care being given, talked with all those wonderful people helping on that journey but felt the absolute desolation and horror of thinking I will never see my sons grow to manhood or look into the eyes of the woman I love. So I can have empathy with anyone being told you have a use by date approaching. 

So the practical stuff. A list I start. Thanks for looking and listening. Love to you all brave people.

1).   Power of attorney.

2)

  • FormerMember
    FormerMember

    Based upon my recent experience after my mother died last fall:

    2) Make sure all usernames and passwords to all accounts are written down somewhere. I spent a month trying to get into my mother's iphone unsuccessfully before I stumbled on a scrap piece of paper tucked somewhere with her password. Other accounts were easier to figure out but it still took a lot of time resetting all those passwords that weren't written down.

    3) Wasn't a problem for our family but I've seen it destroy other families. Talk about who gets what after mother is gone. That way there is no fighting over the family silver collection, etc.

    4) Specifics of funeral. We thought we all knew exactly what my mother wanted until we were actually planning her funeral and realized we all had slightly different interpretations of her wishes.

  • FormerMember
    FormerMember in reply to FormerMember

    Fantastic points, the first point you made specifically is something I would not have thought of so is just the type of answer I was looking for.

    Many thanks

  • 5) End of Life preferences and Advance Care Plan - Having difficult discussion about about resuscitation, levels of treatment - I think there may be McMillian Champ or nurse that may have further advice  on this. 

    6)  Getting documentation tidy and orderly and accessible - cars, insurance policies,  tax, HR or work  pensions information and reference numbers. 

  • FormerMember
    FormerMember in reply to NellieJ

    Thank you Nellie, both great points to add on the list.

  • G'day all,

    As follows is a post from the Carers forum I wrote a bit over  two years ago. Seven weeks after my darling passed, this list is again proving its worth as I have a list of who I need to contact to inform them of her passing (Their end of life is not the end of your journey - nearly, but not quite).

    There were four additional things we did that aren't on this list (Power of Attorney (control of legal and financial matters), Power of Enduring Guardianship (control of health and lifestyle matters), Advance Health Care Directive (her personal end of life choices) and Will and Testament). These were omitted from the list as they may not be applicable in all countries.

    __________________________________________________________________________________

    Although it can seem cruel or heartless, the best thing to do is to get everything, and I mean EVERYTHING changed over or written down before your loved one passes.

    My wife and I did this very early on and it has been a gosend for several reasons;

    1. I now have a far better picture of our overall financial postition (my wife was the accountant and the brains in our outfit)
    2. I've built a calendar of who has to be paid and when (eliminates surprises and help you plan better)
    3. It's helped me prepare for when the worst comes to the worst.

    We simply sat down and discussed how illprepared I would be if she dropped off the perch tomorrow - and I would have been.

    We listed;

    • all her bank accounts (BSB, account number, login ID and password)
    • all her credit cards (login ID, PIN, password and which bank/account it was linked to)
    • all house/contents/life insurance policies (insurer, policy number, login ID/password)
    • all superannuation accounts (insurer, account number, login ID/password, attached life insurance)
    • all car registration details (comprehensive insurer, comprehensive policy number, CTP policy number)
    • all utility (gas/water/electricity) details (provider, account number, online ID/password, bank account for regular withdrawals)
    • all email accounts (username and password, email server details)
    • all onlline accounts (URL, username and password)

    With all insurances and superannuation, we made certain I was named as her beneficiary.

    All of her email accounts are now set up on one of my systems, so we don't miss emails any more.

    We've had a secondary card issued in my name for most of her credit cards (very handy to be able to prove that"you" are "you".

    Of course, doing all this meant I finally got to see all her credit card balances which, after seeing the bank balances, made a lot of sense (none of which was of the common variety). ;-) 

    She says, in her defense, that they were all lovely shoes.

    I said, in defense of logic, that you have not changed your name to Millicent, let alone Millipede.

    Prepare - and do it as a task for both of you. Make the OH think, remember and be part of the "game". Keep them involved in their own lives.

    _______________________________________________________________________________________________

    If we hadn't done this, our lives would have resembled the insides of a zoo keepers bucket. 

    Prepare. and then double check that you have gotten all the information you need and it is recorded clearly and someone other than you knows where this information is. We co-opted our eldest son on this, who was also named as a substitute Power of Attorney and Enduring Guardian.

    Hoping this helps,
    Ewen :-)

    The day after your carers journey ends, the sun will still rise.
    As will you.
  •    Simon / Ewen  - thank you. This is so useful. 

    I am in the process of making a spread sheet of information of my partners things and this reassures me that it is the right thing to to. I have also included the web sites and his user name on things that might be done on line. 

  • FormerMember
    FormerMember in reply to panic

    Wow many many thanks Ewen

  • @nellieJ,

    My pleasure sweetie. Glad it was of some help.

    Ewen :-)

    The day after your carers journey ends, the sun will still rise.
    As will you.
  • No worries Simon. Glad it was of some use to you.

    Ewen :-)

    The day after your carers journey ends, the sun will still rise.
    As will you.
  •  This checklist discussion thread has given me confidence that these things need getting down and got ready. 

    I have looked at sites on the internet 'things to do when a person dies' https://www.nidirect.gov.uk/articles/what-do-when-someone-dies-checklist   This site has links to other useful things like returning blue badges, etc. 

    I have just found this bereavement advice checklist  - amazing what is on this modern interweb https://www.bereavementadvice.org/globalassets/pdfs/bac/step_by_step_checklist.pdf

    I am adding to my checklist people who can help with certain things.  I have no other family support and my partners grown up children are not particularly strong in practical ways. 

    • I have asked a really old friend to help me with paperwork - they are organised and emotionally removed enough to get on with things with no fuss.
    • I have lined up another friend to help me with the dogs and house when the time comes for my partner to go to the hospice.
    • I have two friends who are all action, no nonsense and rather low on sympathy or empathy, but they will be fab at some of the practical things like ringing people and informing people.  

    I hope this helps leave me space to be with my partner and be sad - I find less information about how to manage emotionally. 

    Panic, hope you are doing ok and appreciate it is such a short time since Margaret passed away.