Stem Cell Transplant on hold

FormerMember
FormerMember
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Found out today from CT scan that the lumps are growing again so the SCT is on hold.

Daughter now has to have more biopsies and prob more chemo.

anyone else been in similar situation?

TY xx

  • Hi Ruth, so sorry to hear this news but this indeed can happen....... pants as my granddaughter would say.

    We have had folks in the same position over the years so lets look for them to still be around and pick up on your post.

    Her team will now look at the very best way to move this forward. Possibly a new salvage treatment to move to Auto SCT or even look at an Allo Donor SCT...... and there are other routes out there.

    Hold on tight ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi the is a new drug being trialed that depending on what happens and where she is being treated may be worth a mention, its called mosunetuzumab and here is a link to an article about it https://www.medscape.com/viewarticle/922300

    you will need to register to be able to access it.

    the important point is they have options and CAR-T may become an option to depending on how resistant her dlvc becomes, as for others yes sadly it happens with her type of lymphoma

    John  

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are