Fatigue, aches and pains

I am sorry you are having such a tough time Mogsmum . It sounds like you would like more support than you are getting. Do keep trying with your CNS. They are not able to sit by the phone waiting, but someone should call you back.

Hi Mogsmum

I finished my chemo at the end of May - such a relief!  But it is strange that you then feel a little left out because you are not always going to the hospital and interacting with all of the lovely folk there - both medical and patients!

I had a good chat with my CNS at the diagnostic stage of the process but nothing face to face since - however he did give me his card with his email address on it, saying that it would be the best way to make contact, and indeed it has worked. I always get a reply and I get the action which I had requested.  He did say that phoning would be a waste of time!!!

All the best, I do hope that you will begin to feel a little better soon.

KrisPy

Hi Krispy

Thank you for your reply 

Its hit me hard this round of chemo, no appetite, constipated 

Just want to stay in bed, had chemo tues and still not feeling right now

Hubby is not happy that iam not eating, just having water and fortisips 

The only time I can escape from all this is being in bed 

I am sorry you are having a hard time Moggsmum, I am no where near any of your journeys but I regularly check in to see how you are doing. I do understand how sole destroying fatigue is. I had a targeted therapy today and slept through the whole thing. I also email the mcmamallin nurses as quicker. X

Hi Mogsmum

How are you doing?

I do hope that you are feeling a bit better? It must be very difficult for you in this heat.

All the best

KrisPy

Hi Spanglesx

That seems wonderful to be able to sleep through the therapy- I do hope that you are keeping well.

Best wishes 

KrisPy

• Hi Krispy, I only slept as I had 9 hours of infusions last Thursday night and then on a 4 day mobile chemo. I had 3 diff chemo...and it's first one so all I have done is sleep. Hope u r doing well x

Wow - that is some infusion.  I did mention in a post elsewhere how I had seen folk having much more than I ever did (one bag of saline and one bag of Docetaxel) and I always seemed to be "in and out" within about two hours.

I do recall the one night I had in hospital (emergency because of a temperature spike) that most of my fellows were on overnight infusions.  I call myself lucky by comparison.

I happen to be in a three month break from interventional treatment, but still on two lots of hormone suppressant meds, as I await my next appointment with my consultant next week to discuss radiotherapy on my pelvic area to hopefully blast the cancer, but it is in other lymph nodes which are impossible to get to in the abdomen.  

So what with the tension about that discussion and the blood tests to see if everything is being held in check I am a little anxious - but am aware of it and have mentioned it to my wife who had noticed that I was a little "tense"....

I am trying very hard to manage keeping up my exercise to combat the fatigue - it is so difficult to do in this heat though!!

Best of wishes for the recovery period, take care

KrisPy

Sounds like you are going through it. I hope you have the best news you can next week. I feel I have had no let up since 8/06. In 2 years it has gone from my tongue, to neck, to chest nodes and now my ribs. I was suppose to have a few months gap between the neck radiation and chemo but the ribs scuppered that plan. Things can be tense... I don't deal with sudden changes well and panic... I then do a donkey braying/ crying. My family want me to go on antidepressants. It can be hard on those that love us. Keep well x