Fatigue, aches and pains

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Hi everyone 

Well a lot of chemo fatigue after 2 nd round, also lots of wind 3 weeks on, I keep getting backache and feel as though I haven't emptied my bowels properly. I had a full hysterectomy on the 8th of April because of cancer of the uterus, histology results stage 3 carcinosarcoma, which then changed to stage 4 treatable on the lung and mass in the virgina 

Was staying positive, but because of the fatigue and different aches and pains now getting me down, i find that my oncolgy doctor just ask me a few questions and thats that, only saw oncolgy Dr twice since being diagnosed, first time for what treat I was having and 2 nd time after my first chemo, last one was telephone consultations and so is the next one, also I find the cns nurses a plate waste of time, when  ring no one is available, when  i leave a message I never get a reply.

I just feel that yes we are doing this and here is numbers you can ring, which at the time feels good that there are all these people, but in when needed there is no thing out there 

I will be pleased when chemo as finished, then hopefully scan shows good or bad results 

Ive gone from a working 64 yr old lady, who loved to be out and about chatting with people, to a person who can not be bothered to even get out of bed, not talk to anyone 

My husband is a saint, is still going to work, looking after me couldn't ask for more, we just have no life anymore just appoints tests and chemo 

Thank you all for listening

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  • Hi Mogsmum

    So sorry you are having such a tough time. Sounds like your hospital’s oncology department is not that well run. You need to get a good quality of life alongside your cancer treatment and clearly is not the case. I suppose there is the two choices

    1 Write to PALS at your hospital and hope they can somehow improve. 

    2 Change to another hospital. Are you near another hospital that is a tertiary cancer hospital? They would have more experience and facilities.  

    I think it is normal that the oncologist just call you unless is a scan result day. But make sure you let them know all you issues and they can adjust medications to help things. My hospital has MYCHART and I communicate with the CNS via message and it has been really helpful much faster response. Does your hospital has a patient portal ? Maybe worth register?