“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • FormerMember
    FormerMember
    • Hi you.  Was wondering where you were.  As you know my journey is similar to yours, although a more recent diagnosis, and I have my restaging scan on 25 January, seeing onc on 01 Feb.  I am on carboplatin, etoposide and atezulimab.  My onc said the brain does better with immunotherapy drugs than with radiotherapy drugs so here’s hoping for a good result for you.  XxxMazxxxcX
  • FormerMember
    FormerMember in reply to John Boy2

    Hallelujah!!!! I'm not going anywhere without a fight! (preferably with Norbie McNorbface!)

  • FormerMember
    FormerMember in reply to FormerMember

    Hey Maz - good to see you too...

    Thx for the encouragement - seeing my Cons Onc next Weds so will ask him a raft of Q's

  • FormerMember
    FormerMember in reply to FormerMember
    • I’m in chemo on 3rd - seeing onc on 1st - let us know how you get on.  Make sure you ask a gazillion of questions- we should all come up with a list for you lol!!!
  • FormerMember
    FormerMember in reply to FormerMember

    I promise only to ask the embarrassing ones... There are many...

  • Sorry to hear your news SiT, but it’s good there are still options. Sounds like you have a good team there. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Hi , i'm glad you're back! I really missed you ( and i would miss to ) so mets in brain it is now..well i had a big one there, it's gone after surgery and rt....and you can do same. You're a man at all, so it's a piece of cake for you! Good luck!!

    I had my 5 year cancaeversary in October..but it doesn't makes it easier lol...next CT in three weeks...oops

  • FormerMember
    FormerMember in reply to chellesimo

    Thank Chelle - they are all incredibly good to me and for that I am sincerely grateful.

  • FormerMember
    FormerMember in reply to Pet1968

    Thank you so much Pet - brilliant with the 5 years!!!

    Unfortunately I am sclc so unlikely they will operate but the RT & chemo/immuno looks like it will go ahead unless of course, they offer me the Captain America juice...

    Norbs isn't allowed to go anywhere as he is currently confined to the naughty corner on a cold step without even a cushion to warm his cold cheeks (ahahahaha...) - THAT is the price of his sin!!!

    Good luck with your scans.

  • Hi , Sorry about your news, but good luck with the treatment, and as you say, sounds like a good team around you. Welcome back. I saw this old article and thought it again might re-inforce why we need and use humour in dark times, and god knows these feel like dark times.

    www.theguardian.com/.../you-have-got-to-laugh-why-a-sense-of-humour-helps-in-dark-times