Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Hi Eddie, We had a wonderful time and couldn't believe how lucky we were with the weather. We had a full week, out every day doing something nice. The journey back and the stops weren't just for me by the way, we went out on Friday night for eats, they were delicious but I think my other half had more than his stomach could cope with, so we needed lots of comfort breaks on Saturday for him and a walk about for me! What a pair! We have both rested since we got back and will continue to do so until all is well!

    The truth is, we can feel tired and I can be aching without knowing why, so when I've had the benefit of doing something special, I don't mind! In actual fact you are right! My next break is already planned for next week! My sister wants to see Dumfries House & Gardens and no one else wanted to go with her, so I volunt! We go a week on Tuesday, have pre booked Dumfries House for the Wednesday and return on Thursday! We could have gone and come back in one or two days but decided we would take it easy and be kind to ourselves, I am not getting any younger and my sister is seven years older than I am. I hope this finds you as well as possible! Good night and good morning! X

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • good night Annette, hope you get some sleep, take care.

    love Eddie xx

  • Good morning. So glad to hear you are feeling better. Great news. I'm not sure whether or not my PICC line will work next time. It seems to have a mind of it's own. I'll find out today as I have chemo later. I hope your trip to retford to see friends went well, how lovely. Did you manage to get anything planted? You have been busy. Did you make Maggie's and how did counseling go? I've not been up to much past day or so. Pottering doing some jobs around the house and pottering in the garden. Got some hanging baskets from garden centre and hung them up. Yesterday the rain was dreadful. We had golf ball hail stones. It looked like we had a blanket of snow. Very strange in summer. Enjoy your day and take care x

  • Pleased you had a great time away Annette. Hope you're not too sad to be back. This happens with me when we take a trip. I'm okay on the journey there but coming back is really difficult. Have to do numerous rest stops. Probably exceeded our limitations I guess x

  • Hi Marie, how are you feeling, hope the new meds are helping you through chemo as well as last week, the PICC line behaved, and there were no unnecessary delays, those hailstones sound a bit frightening I hope there was no damage and your furry friends are safe and well, hanging baskets are nice, I do two every year and always put Indian mint in, No planting yet and no Maggies stuck with light exercise, counselling, stand in, and I couldn't open up, though back Thurs + day hospice, Retford with friends was nice, discovered a new cake shop Nicole Olivia fab, Today 1st trip to respiratory clinic and have cystoscopy results, gland ectasia to add to my collection at number 20, I don't know whether to celebrate, I hope you are well, best wishes.

    Eddie xx

  • Hi Marie, manage to PM the Tshirts

  • Good morning. I am well thank you Eddie and hope you are too. Unfortunately chemo didn't go well lol I've had a good running huh it was time to go wrong. There was a 2 hour wait, PICC line didn't work, had to go for an X-ray, PICC line was in place but they still decided to flush it, home at 8, 6 hours later and straight to bed. Feeling okay this morning, no sickness so far. Hopefully this will continue. Sorry to hear you had a counseling stand in and couldn't open up. Hopefully it will go better on Thursday. I'm thinking of attending this look good feel better workshop at Maggie's. Hopefully they can teach me how to pencil on eyebrows lol I'll take a look at that today. Cake shop sounds wonderful, love cake and chocolate shops. Oh no with the gland ectasia, sorry to hear. I hope you're okay under the circumstances. I agree, celebrate! What's the other option huh? What are your plans for today? I'm taking it easy after yesterday's shenanigans. Will potter in the garden should the rain stay away. Take care and enjoy your day x

  • Morning Marie, I imagine you slept like a log, what a palava yesterday, and why did you go to X-ray, they have portable hand held scanners they should have brought to you, nice to hear your feeling ok today and will be taking it easy and enjoy your pottering, you should get to Maggies, it will do you good, there's always someone to talk to and if your lucky free cake and a cuppa, Nicole Olivia's was fab, has a couple of tables too and drinks. counselling I couldn't open up and tell a complete stranger everything, especially as i'm not likely to see them again, and I am seeing Jo Thursday, no appointments today, but need/want a PSMA PET CT so will see my LCN at urology to ask the quickest way to get one, so may be chasing that today, need to phone about full hospital nots, MRI brain and donor card, gland ectasia not a worry, what's the point, glad you liked the photo's, don't reveal myself to anyone, LOL

    Eddie xx

  • Good morning. They always send me to x ray. They have never mentioned any hand held scanners. Next time I shall ask them. Anyway feeling okay, appetite is slightly off but it's not preventing me from eating and drinking so that's all that matters. How did your appointment with Jo go? I don't blame you not wanting to talk to a stranger, you need to feel comfortable. Did you manage to get everything you wanted to do on the telephone. Sometimes getting through to people on the phone is a nightmare, can be quite stressful. Hope you managed to get things sorted. So weather is not great here, plenty of rain, so not been up to much. Did some cutting back of hedges and bushes in the garden but I didn't last long, too much hard work for me. I know you don't enjoy most TV but I've been enjoying The Traitors. Never usually watch reality TV but I'm quite addicted. I blame the daughter, she introduced me to it. Had a shopping trip to waitrose. There a a number of brand items I love that I can only get there so stocked up with lots of things I love. Other than that I've been quite boring lol How about you. What you been up to? Enjoy your day and take care x

  • Afternoon Marie, good to hear your doing ok, hope you have been treating yourself, We don't have a waitrose, but  I'm sure they sell yummies, so your pottering with one eye on the weather, same here, not sure about weekend yet, I hope you have plans, I think Sunday is better weather wise, how did the look good feel better research go, got to be worth a try, and I trust you checked for nesting birds before pruning, Jo was fab, saw a couple of nurses at the hospice to update my health issues and have a physical, have lost 7 kilo's since April so all good for 12 more weeks. phone calls all ok, PSMA PET CT sorted, organ donor + medical science cleared up and MRI brain results next Friday, not done anything lately, just been with family and little walks, we were going to Norfolk today, maybe later in the week.

    Eddie xx