Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Good morning. Really pleased to hear the gp and ht injection was sorted. Hope that all went well for you. And hope the Manchester airport run went okay too. Hope it didn't tire you too much. Me and the daughter browsed the local charity shops and I got a Cath Kidston bag which I'm really pleased with. We didn't have a bagel. I browsed the menu and to be honest, other than the breakfast, which I didn't fancy, I couldn't see a filling I fancied. We had brunch instead at the Pudding Pantry. Lovely day out. Today, hospital to get bloods done. I'm going soon to get it out the way. Not sure if up to anything later but happy to come home and potter around. Weather gloomy and rain expected anyway. Enjoy your day and take care x
Morning Marie, all ok with GP, only negative my PSA is up to 1.04 but that's ok, out again, that's great, and as for Cath Kidston I have lot of girlfriends "platonic", I am familiar with her flowery handbags, so how many handbags do you have now, not a fan of bagels, pudding pantry sounds nice though we don't have one here, Isn't the weather rubbish, good luck with the bloods, and your day. I will be taking it easy as I collapsed and ended up in A+E, eating/bowel issues, all good now, though want to stay close to the bathroom, take care.
Eddie xx
Hi Kate, just got back from my final test and all good thank you, been a little off my food lately and it's been messing up my bowel movements, hadn't been since Monday so had compaction which was pressing on my spine/nerves, idiot that I am knew this was happening as my body from the waist down felt very heavy when standing up, but ignored the warning signs and spent 18 hours in hospital, though would have had to go anyway, how are you Kate, hope your feeling a little better and have Candy back, what have you been up to lately.
Eddie xx
Hi Eddie
I had the compaction problem before Christmas 23, and ended up in A&E on Christmas eve, having an enema....which did sort out the problem rather quickly...which caused my body to go into shock, and I started fainting half-way through the biggest poo I've ever had in my life! Most embarrassing. What a Christmas present for the nurses on duty. Went into an adrenal crisis because I hadn't been able to absorb my usual steroid dose. It makes my blood pressure drop very quickly.
Looking back, it was quite funny, but was scary at the time. I spent the rest of Christmas drinking large amounts of Laxido....
Sorry you've been through it, and hope you're able to eat normally now.
I've been rather up and down, with pains that keep coming and going, so have been lying down reading in bed quite a bit. Waiting for an ultrasound now.
I've felt OK today, so had a lovely walk this morning in the sunshine. Saw a deer, but thankfully Candy didn't!
Had a long phone call with a friend, who I'm hoping to meet up with on Friday, in Carlisle, if my stomach doesn't play up. It's a lot of driving, and a train journey to do it, so it takes some stamina!
Hope to get back to gardening again if I continue to feel OK. It has felt quite cold here....I've even had some heaters on!
Not much else to report....
Kate
Hi Kate, that's awful what you went through, I'm so sorry, understandable it was frightening, was I relieved it was compaction, though it was a pain in the arse it was better than the alternatives, they tested for, perforated bowel or spinal chord compression, which I have regular scans for as I am at higher risk, and It's not a nice way to go, like you an enema sorted it out, what a relief, eating ok but surprisingly bot been to loo in 24 hours, I love reading too and will put One last thing by Wendy Mitchell on my list, sorry you are still having pains, hope resting up and your ultrasound sorts it out, nice to hear you got out with Candy and yes it's cold here and even colder tomorrow. I do hope you get to see your friend but it is a long way to Carlisle, I seize up on long journeys my joints go stiff, I know I should stop and stretch every hour but sometimes you just want to get there, Getting back in the garden sounds nice, good luck with that and getting to Carlisle.
Eddie xx
Oh Eddie that's awful news, that makes me so sad to hear that. I'm glad to hear though that you are feeling better now. I really hope you are on the mend. And yes, I second Kate and hope that you are resting and taking it easy. Bloods didn't go well yesterday and Megan did them. She couldn't draw enough blood for a sample so had to take blood from the left arm. With a needle aaaaargh. Thankfully it went okay and I didn't pass out. Other than that all is good here. Not up to much today. Weather doesn't look to bad. I'll get my washing done and potter in the garden. Take care and take it easy x
Morning Marie, I am good, all's well, I'm ok with needles now but had a real fear in my younger days and can remember how awful the experience was, so well done for being so brave, I hate to think how you would have coped if Megan wasn't there. Will your PICC line be ok for your next session, I do hope you get out today as forecast cold and wet tomorrow. Don't do, doing nothing and resting but took things easy yesterday, just a few short walks and a trip to Retford to see some girls i used to work with, allotment today friends have prepared some raised beds for me so i can start planting, was thinking of starting Ongoing at Maggies Notts tomorrow though would have to cancel an exercise group so undecided, I'm also back on counselling tomorrow as well, not sure i need it, but better too early than too late. say hi to your family for me and have a lovely day, take care.
Eddie xx
Hi, Kate, I hope you manage to meet your friend in Carlisle. We just came back yesterday from a break in a cottage near Durham for a week. The journey back by car was longer than the trip there, as we had to stop for regular breaks when my husband had to 'peel' me out of the car, I was so stiff. A journey of what should have been about 3 hours, took us nearly 8 hours, so yes it takes stamina and determination but if we hadn't gone we would have missed out on a lovely break, so it was definitely worth it. Also it rained and was cold most of the time we were away and was raining and windy when we got back yesterday. While we were away, it was dry, sunny and not cold at all. The first rain we saw was on Friday when there were a few heavy showers.
We have both had a long lie this morning and had a day resting. The temperature here is so different, we had to put the heating on last night, it was so cold here. However it was definitely worth going as we had such a lovely week doing different things every day! You go for it and rest when you get back!
Love Annette x
Hi Annette, nice to hear you had a wonderful time in Durham, I have a soft spot for the town, but especially the university though I haven't been for a long time, I would like to see it one more time, I hope you are both feeling better, your drive home sounded like torture, please tell me your body has recovered, I occasionally have to peel my hands off the steering wheel and that's sore enough but not my whole body. I guess you will be planning your next holiday if you haven't done so already, and why not, Taking family back to Fort William in July, so far 13 are coming though not the newest member of the family who is due on 2nd of July or mum, I hope I never have to be peeled out of the car, take care.
love Eddie xx
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