Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Hi Eddie and everyone

    I continued cutting back ivy yesterday, but gave up after an hour....getting bitten by the midges again. I now have bites all over my head, including round my eyes and ears. Really aggravating!

    I should know better, as I've always been a target for midges. I do have a midge hood, and repellent but can never be bothered to get prepared before I go outside. I'll call into the pharmacy and try and get some itch relief, but I've yet to find a product that actually works.

    The stomach pain is on and off...seems to come on an hour after eating breakfast, so the last couple of days I've not had breakfast, and it's been ok. However, I'm going to the doctors in an hour, so I've eaten this morning, to see if it starts the pain off. I can't avoid food, as I'm losing weight, and don't want to!

    It's forecast to rain today, so gardening is unlikely. I'll be forced to do housework....not usually at the top of my agenda.

    Hopefully I can get Candy out before the rain sets in.

    Have a good day, whatever you're doing!

    Kate

  • Morning Kate, bloody midges strike again, though how long have you been in Scotland?, you really should know better, though I am just as bad, I cant sleep with the window shut and when it's warm i know all sorts of bugs will be coming in at night and feasting on me and all i need is a simple bug screen and problem sorted. Sorry to hear you are still having pains in your stomach, fingers crossed your GP sorts it for you, showers here too, though I am sure we will  both get the dogs out, 3 appointments today but nothing tomorrow but bloods at 8am, my only free day so hope to do something. I'm with you on housework, don't mind doing the kitchen or bathroom after use, but general housework no thank you, luckily i have a friend to do it. best wishes.

    Eddie xx

  • There has never been a Mrs raven, just two guinea pigs meg and mog. Same here Eddie, used to love walking but soon tire quickly now. And hills are a big no no. I usually have to rest stop going up stairs. Yesterday me and daughter cleaned the basement. We have a refurbished basement, daughter stays down there lol I'm suffering today with pain even though I did very little, bit of hoovering. Deary me huh lol How did your jab and test go? Well I hope? Yes, chemo today. Waiting to see if I get the nausea again. Hopefully the steroids will help. Palliative nurse has also given me some peppermint capsules to try. Everyone has been very kind and helpful. Enjoy your day and take care x

  • I suffer with stomach and bowel problems too. Every morning I'm woken at 6 with stomach cramps and they remain there until I can go to toilet. Can be quite painful at times. I have nausea too. Caused by chemo I believe. I don't have it all the time thank goodness. They have given me all manner of medication but sometimes a new medication can cause problems too. What a palava. I'm sorry to hear youre suffering too. I hope the gp gives you something to help x

  • Hi Maria, sorry for the delay, appointments + my GP .called wanted to see me today instead of Friday and sent me to hospital for a scan. I hope your chemo has gone well, no delays or issues with PICC and the new meds are an improvement on the last ones and your not feeling too crap physically or emotionally. Marie not being able to go on long walks, as you say is demoralising, it was my favourite pastime by a long way, suppose i should be grateful i can sometimes do 20 minutes, though I try to avoid any slopes, even downhill as my neuropathy makes it difficult at times. You keep your daughter in the basement, does she have a key or a window lol. Hormone jab 7.10pm tonight, in half a hour, and bloods tomorrow 8am, no plans yet for tomorrow. Our Tshirt exhibition is going global, well Retford anyway it's a start, I do have pictures just don't know how to PM them, or even if you can. Read your post to Kate regarding new meds, always talk to your pharmacist about them first, off to surgery, take it easy,

    love Eddie xx

  • Hi Marie, hope your week off and the new meds are helping you cope with the chemo and it's side effects, or at least easing them and reducing the time you have to put up with them. I looked up Meg & Mog, I have heard of easy reading and I encourage everyone to read but really Marie I am disappointed. My appointments were a joke, HT jab last night, they didn't have one, said it may be a week so got prescription and found one this morning, had PSA blood test + others this morning, 3 vials needed, she wanted me to come back twice more, to only do 1 vial at a time, I changed her mind, and last but not least was sent for a MRI brain again, I though it was strange as I had 1 not a month ago, the radiology technologist at the hospital told me 3 months between scans is the minimum. Still having a nerve conduction test and spinal tap. Good news called my nurse who usually does my HT, she said pop in anytime Friday and she will do it, If your not feeling good, I hope you are resting and being taken care off, take care,

    Eddie xx

  • Hi Kate you are quiet today, hope you are ok and just busy doing things you like. I hope your stomach is feeling better after seeing the doctor, and the midge bites are clearing up. Did you manage to get in the garden and finish tidying the ivy or is it a really big job, I'm sure  you would have had Candy out for a walk once or twice and didn't have to do too much housework. was talking of going somewhere today but the mess up at the GPs and hospital got me down, you like to feel the doctors and nurses are supporting you, I never felt that today and I feel a little down. Though i did leave hospital with a sore throat, taking brother to airport tomorrow 4hr round trip, tough when I feel ok, think it will be a struggle tomorrow, But it's a new day and we have to be positive, hope you had a good day.

    Eddie xx

  • Morning Eddie. Chemo went okay. Had about an hour wait but that's better than 2 huh. When they took me through I was in a bay all on my own. Which was nice but it makes you wonder what's the problem with delays. There was no problem with the PICC line and everything flowed okay. They gave me a new anti sickness. And up to now I have no nausea or sickness at all and appetite is still good. I am however constipated lol Which is a side effect from the new anti sickness. Can't win huh! Meg and Mog was one of my daughters most favourite books when she was a child. My daughter named them because of that lol My daughter also loves anything macabre and supernatural and she loves witches. As do I actually lol I'm really sorry you had such a bad day with appointments. It really drags you down when these things happen. Our stress bucket is full as it is and it really doesn't take much to tip it over. I really hope things have come better for you. Any plans today? I will be attempting to put up some new curtains in the basement. And me and daughter may go for a walk around the local high street. There's a new bagel shop we would like to try. Take care and enjoy your day x

  • Hi Marie a lot of positives from your chemo session that's great news, I am so happy for you, just constipation welcome to the club, water, exercise and fibre works for me + docusate/movicol if I'm not eating enough. Your daughter likes the macabre, supernatural and witches no wonder you keep her in the basement, hospital and Dr's all sorted, have my HT injection and can see nurse any time Friday, had a massage very early today, been to hospice then taking brother to Manchester airport at 1pm, I bet you didn't think you would be doing anything today, so a lovely walk with your daughter is a nice surprise and yummy's as well, wholewheat or wholegrain bagels will help, take care.

    Eddie xx

  • Hi Marie, Apart from the hour wait, I am pleased to hear everything else...PICC line...new anti sickness drug.. all went well. I hope you and your daughter enjoyed your walk and as well as stopping at the bagel shop, you managed to call in for a cuppa somewhere too!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!