Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Kate your garden sounds amazing, it just needs someone with your eye to see through the overgrowth, would be nice to see some photo's as it gets transformed through the year, I know there are many on the forum who like to garden would love that too, do you know what you want it to look like when it's done or are you just going to see where your restoration takes you,, I do envy you your project, but isn't the wind a pain, I'm well away from the sea and I still get wind damage every year but i love my allotment, as you say it's good for the soul and your sanity, it's my escape and apart from buying onions for 3 months all my veg is homegrown and most of my fruit, though i have had to ask for help from eldest daughter and her partner this year but they are great. best wishes.
Eddie xx
morning eddie, hope you're keeping well. Chemo yesterday. The good chemo nurse wasn't there, in fact there were hardly any nurses there. However, picc line worked and all went well. Again though I had a 2 hour wait because, they said, people going off sick. Tired when I got home fell asleep and straight to bed but feel okay on waking this morning. All good at present. It was raining yesterday so did little. We forgot to take the pillows and blankets in from the patio. Daughter did it upon finding them but was too late. They'll dry huh. Looks like another rainy day today. Dave is working so it will be a pottering around day i think, plus i have a couple of parcels arriving today. Always happy to stay home and potter day after chemo anyway. Mum raised me on charity shops. Remember the days out with her getting excited as to what we may find. They're awesome aren't they, especially when you hit places like Brighton etc. I love that you went back and bought the matching 2 seater. Ace!!!!! Did the delivery all go well, i hope so and hope youre sat sprawled comfy on your brand new spanking sofa right now. Hope you enjoyed allotment and exercise group. And hope your friend is okay as much as can be under difficult circumstances. Oh yes its been great with the new peeps threads to read, glad others are joining in, its good to hear their news. What plans have you? Enjoy and take care X
Afternoon Marie, at least some things went well at chemo, you must feel floored with the delays, no wonder you go to sleep when you get home, though i am really happy you are coping well, Yesterday it rained, no allotment, Poppy wouldn't go out, had exercise class, new girl as regular one is on holiday, says she is early 20s but looks 15, really nice girl though "as a person", When I got home my son and his family were there, It's been a while since they visited, had 6 hours before hospital prep so went to Cleethorpes, great but we all got soaked. Fancy leaving the blankets out in the rain, computer games?. Well what's in the parcels, are you not saying because they are for me, It's not my birthday till September. Aren't mums great and nothing wrong with charity shops, I am often in them, though growing up with 4 brothers I was lucky and happy with whatever clothes i got and days out were fab, always on the train and usually to the seaside, happy days. Even when i moved out, had my own family, mum was always invited, even when kids had moved out i would often take mum and my aunt, or her best friend out for the day, my mates thought it weird, guess their mums were not like ours. Sofa's are so comfy, looking for a couple of matching throws as wet dog is not allowed up.no issues getting sofa's in our out I MEASURED FIRST, not sure they are new but not an issue, made the delivery guys a couple of cheesecakes, today at hospital for cystoscopy and colonoscopy, parking horrendous, preliminary indications are hopeful, know more in 2 weeks, no problems with tests so went to allotment for a couple of hours, have a massage then off to see my bet friend, Marie I will PM you about her, enjoy your pottering, as you say best to take things easy so soon after chemo, and yes it's great that others are posting, though i don't see you posting on other threads much lately, have a relaxing day and say hi to Dave for me. take care.
Eddie xx
Hi MarieT and all
i wish I could eat cake! I used to shovel away tone and loved baking. My sweet tooth went bonkers and left me last year during my first course of chemo. Returned briefly but much but reduced markedl Why did it not clear off in my Slimming World days?
now after failed immunotherapy- 6 months having home it might just work! - my mouth and taste and gag reflex totally disrupted- cake with all its crumbs feels scary. Makes me gag if it so much as catches back of tongue - scary
I’m working on this with profs but it’s very frustrating and I am often hungry. Focusing on safe eating, adding calories to my body., and trying to increase protein. Frappuccinos are my new best friend!
ahhhh wow that's ace your son visiting. Awesome!! That must of cheered you up no end. And a trip to cleethorpes, fabulous. Youre right about the weather mind, its been rain, rain, rain all the time here, heavy rain too. But still, i know you wouldn't have let it spoilt your time with son and family. Glad to hear youre enjoying your new sofa, it sounds lovely, what a bargain. Does Sheila like it, is she back from her trip? Youre so kind and thoughtful to make the delivery guys cheesecakes, what a lovely gesture, they must of really appreciated that. Okay so what news have I. Well I was doing so well on the chemo but not yesterday, the day before, I was sick. Had an anti sickness and did feel a little better. Then yesterday I had sickness and diarrhoea, again had an anti sickness and did feel a little better. And today i have a low mood, its a cry day. I know it will pass but i felt so well and dont want to be ill again. Feeling a little sorry for myself lol So nothing much exciting to tell you seen as though i haven't been anywhere the last couple of days. I may have a trip to M & S today, i have a parcel to collect and it may distract me. My other parcels, one was a summer hat and the other, a summer scarf. Nothing exciting. Well, heres hoping you have more exciting news than i. Enjoy your day and take care X
hi greenclifflady, hope you are well today. Ohhhhh no, no cake!!! Thats an absolute sin lol Such a shame. I'm having chemo at present and was doing so well until past couple of days. Feeling sicky ughhhh and lost my appetite. Not great is it huh. I'm sorry to hear you are having these problems. I really hope you find ways to make things better. I sometimes have food catch my back of the throat and it sets me off coughing. Youre right, it can be scary. I've never had a frappuccino, im not sure whether or not i would like a cold coffee but i guess i dont know until ive tried. I shall have to have one. What plans have you for today, enjoy and take care x
Morning Marie , so sorry to hear your chemo is causing you problems, the antiemetics you are taking, if you feel there not much help , change to a different one there's usually one that helps. Sheila's been back since Monday, the summer hat and scarf sound fab, though i am disappointed they were not for me, i always put a hat on. hope you get out today M&s do eclairs not cheap but worth it, taking my "best friend" and her kid out, hopefully fresh air and exercise will make you feel a little better, I think cry day are inevitable, had a few lately, did you read my PM, take care.
Eddie xx
good morning eddie, hope i find you well. Thank you for the well wishes. Friday was not a good day, sick. But picked up yesterday and was able to eat. I hope im on the mend. Took your advice and rang the rapid response team. They prescribed another anti sickness, one that doesn't cause diarrhoea. Should i feel like this again this week after chemo ill try them see if better. At hospital yesterday to get bloods done, megan did it and all went well. I love hats, i wear them all the time too, winter and summer. At the moment i dont have much hair so love them for that reason too. Although my hair is growing back and i have been taking my hat off more than i normally would. Because of the heat. I just don't know if its all going to drop out again on this new chemo. I didn't make M & S due to illness so no eclairs for me. I love eclairs!! But will still need to go as i still need to collect a parcel. The sun is shining here today. As i feel better, hoping to either get out or at least get in the garden. What plans have you? Hope you and youre friend are as well as can be under the circumstances. I did read your PM yes, Thank you for the updates. Take much care and enjoy your day X
Morning Marie so sorry to hear how you have been feeling, but glad to hear you are eating, the antiemetics work in slightly different ways and there will be one to suit you, another yippee for Megan she's fab I hope you get her every time. Bet you look great in a hat, I don't have much hair either though understand it's much tougher for you girls, though it's great it is growing back and hopefully your new treatment won't change that, I'm not jealous!!!..You deserve an eclair or two. Sunny all day so get yourself out, that's an order, seriously it will do you good, We are at the lakes, Sheila, me, my friend and her boys only went for the day but decided to make it a weekend, give us time to talk, take care.
Eddie
thank you eddie and im feeling much better. Oh how lovely you are at the lakes. And to make it a weekend, that's awesome!! Hope you have had a wonderful time. Are you home now? You're right about the hair thing. Men go completely bald and we never give them a second glance but when its a woman its different. I believe thats changing thought, People are becoming more accustomed. Erm i hope!! Wow wasn't it hot yesterday. We went to Matlock, had a browse and then went for sunday dinner at the maynard. Great day but rather a sweaty one. Dave is working today so no plans as yet. Its rather gloomy too. I'll see where the day takes me. What plans have you? Enjoy, whatever you may be doing X
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