Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Hi EllieKate, was wondering why you stopped posting, you have been on holiday, that's fab. I hope your going to tells us all about them, though living near Whitby must seem like your on holiday all the time, one of my favourite places and not far from my corner of Yorkshire. Weathers been great, got to Scotland for 4 days to see family which was wonderful, and the Harrogate flower show as well, and the occasional hospital visit, but not complaining, take care.
Eddie xx
I've been REALLY enjoying the weather thanks Eddie! Although it has been on the edge of being too hot at times. It's made such a change from all the rain....and I've been desperate to get going on the garden renovations.
I've not had the house long, and got my cancer diagnosis when the house renovations were half-way through, which was a bit of a 'facer' to say the least. I had to get the house finished before tackling the garden, which I honestly didn't think I'd be here to do, so I feel very fortunate.
it is so overgrown, I actually found an apple tree that I didn't know I had!
I'm waiting for my latest scan results, due in a phone call on the 21st. Keeping as busy as possible in the meantime. I still don't think I'll agree to any more treatment, as I feel well, and don't want to jeopardise that. A difficult decision.....but I might be 'stable' again, so nothing to worry about yet.
I am amazed that it's nearly two years since my incurable diagnosis! Sometimes I feel like a fraud, when I read other peoples' posts. I'm just thankful that I can still enjoy my life, and feel blessed.
Hope your new sofa is comfy!
hugs
Kate
Hi Kate i love this weather, what a coincidence I was half way through adapting my house for disabled use when i got my diagnosis, just need some damp proofing and plastering done then finish with the decorating. Kate what does "facer" mean?. I see every day as a bonus, especially as like you i feel ok, and hear of the struggles some are going through, I had decided on refusing any new treatment, but something has happened which may change that, will know more soon, though i do understand and support you with yours, but let's hope it's a long way off, and best wishes with your scan results, and I hope the garden project keeps you busy and looks amazing when it's done. the sofa is fab a 3 seater, there was also a 2 seater which i think i will get too. take care.
Eddie xx
Morning Kate, thanks for explaining facer, always nice to learn, I think we both won, i too was diagnosed nearly 2 years ago and try to get the most out of my time, but can't deny there have been down days. You must have a big garden to not see an apple tree, I wonder what else you might find, my terraced house garden is tiny though I do have an allotment 5 minutes away. The sofa's lovely, you don't realise how bad the old one had got, Will be getting the 2 seater today, another day so another WIN, take care
Eddie xx
yes, hooooorah for Megan, but no she doesn''t work in chemo. There is another good nurse in chemo, unfortunately i don't know her name. Heres hoping i get her again. You rant all you want, youre not ranting anyway, your passing on your opinion and i appreciate that. For some unfound reason i thought it was going to rain and thunderstorm yesterday but youre absolutely right it didnt so we didnt have sunday roast after all. New sofa and coffee table, awesome. That's ace. When are they delivering? And, yes, i certainly hope you do get it through the door. Really happy with ours, sooooooooo comfy. Had a walk to local high street yesterday, browsed some charity shops and had a pub lunch, pie and mash, yummmy, was a lovely day. And then home to sit on patio and play playstation lol all good fun. Wow, i couldn't believe it when i got up and checked emails and saw there were 12 responses on the pessimistic thread. That's fab!! I'm going to enjoy reading through those. What plans have you today? Dave is working so may be a lazy day for me. Whatever you may be doing, enjoy X
that's awesome living near Whitby, i love the place. Underage drinking in the pubs round pickering sounds like an absolute blast. Rick astley in scarborough, will be fab. Enjoy and have lots of fun. The minute i read rick astley, was singing never gonna give you up in my head lol Im sorry to hear you was awake so early but glad to hear you made the most of it in the garden. I have painted our shed and fence blue, really pleased with it. You did an amazing job considering you was in your wheelchair, well done you! What plans have you for today? My partner is working so think it may be a laze day for me X
Morning Marie. Megan's fab, but you have to find the nurse in chemo, I hope you do, at my cancer hospital there is a notice board with photo's of all the nurses and their names, can you remember the date you saw her it should be on your records, ask the nurses next time. Sorry you didn't have a day out or a yummy roast , though charity shops are great, did you buy anything, I was in one of mine recently and bought a load of covid test kits for 10p each, pie and mash is fab with proper gravy I hope. Monday is meds day for my weekly ones, I have been to hospice my referral needed updating and day hospice renewing, been back to air ambulance shop and bought the matching 2 seater, delivery today 6.30 pm, off to allotment soon then exercise group then my friends to support her, Great having Elliekate and Kate on the thread, though no Annette. Enjoy your lazy day IN THE SUN.
love Eddie xx
Hi Eddiel
My garden is large, and extremely overgrown with very densely planted trees and shrubs, which have all grown very tall and leggy to get to the light. In places, the paths have become impossible to push through. Hence only finding the apple tree last week!
There are also many sculptures hidden amongst the plants, made from beachcombing trips and scrap metal by the previous owner. I loved the garden as soon as I saw it, and was determined to restore it and give it some TLC.
I've had to take out some of the sculptures, as they had spiky metal bits sticking out at the same height as the eye level of Candy...not safe! But there are enough left to make the garden feel quirky and different.
I'm still at the stage of taking out very leggy shrubs, saving as many as possible, but also having to be ruthless too. The other challenge I have is the wind....the house is above the estuary, and it's incredibly windy! It needs the trees to act as shelter. I do enjoy a challenge though!
In my previous life, I was a garden designer....
When I bought the house, I saw the garden as a five year project. I hope I do get the chance to see it flourish!
Having an allotment is great....the social scene on allotments is fun, apart from the satisfaction of feeding yourself with very fresh veg. I tend to just grow a few herbs now, and some salad leaves.
it's good that you're able to get to yours....gardening is good for the soul!
Kate
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