Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Hi Marie, It is good you finally got your chemo but quite honestly a disgrace they didn't sort out your pic line long before this. If they couldn't get blood, I wonder why no one thought of using a handheld ultrasound to find the vein. I don't let them get away with stabbing me multiple times and ask them why they don't use the scanner at the beginning when they know about the problems I have..mostly now, if they don't get it first time they use the scanner.

    I am so pleased the chemo eventually went in but again, you really need to speak up about the length of time it took, especially as the chemo is not a one off and will be done again and again. Do you know how many sessions you have to have? Great you had a sleep when you got home, I'm sure you needed it!

    Please don't feel you have to reply to me individually, The one reply does for multiple people, rather than taking time to send two or three! It's no problem as I would read all the posts anyway. Take it easy!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • good morning eddie (and Annette), hope I find you both well. You're absolutely right the picc thing is a disgrace. When I asked them what their intentions were they said that picc is apt to do this and it can come right next week. Also, the xray showed the picc was in place, so how many weeks do they still give chemo on the basis of this I don't know. Regardless of that im back at hospital tomorrow for bloods and no doubt they will be taking it from the other arm again should picc not work. It's a joke right. I'll see what happens tomorrow. In answer to your question Annette I believe im having 12 chemo's again. Anyway, still feeling good, no problems as yet. Ooooooh wasn't yesterday a beautiful day. My daughter is here eddie but we didn't go out we were in the garden. Patio, deck chairs, books and a little tidying. And I believe we have another scorcher today. Hope your day out with best friend went well eddie and that you had a good time. Oooh how exciting, Sheila in London for 3 shows, awesome. Enjoy your day both of you, any plans or will it be a sunshine laze? Take care X

  • Hello Marie, Your PICC line is beyond a joke, you could have 30 hours of unnecessary and stressful delays over all your cycles, I wouldn't and i know Annette wouldn't, sorry Annette presumptive i know, put up with this, I know it's not nice complaining to the staff as we all know the pressures they are under, and personally I am ok making small allowances to help them out, but your situation is well beyond that. there are no repercussions for making a complaint, rant over. I wish i could say our day out was good, and for the kids it was but my friend and I have things to work out due to some awful news. Sheila stopping in London a bit longer. Sounds fab lounging in the sun, reading with your daughter, what were you tidying up, I hope it was cake boxes, no plans till Monday and 9 appointments next week, so will get some little jobs done and out of the way then see, What are you up to today with your daughter, whatever it is enjoy, 

    love Eddie xx

  • good morning, hope i find you both well. So, yesterday morning I went to get my bloods done expecting more mayhem but a nurse I know, megan, did it and there  was absolutely no problem whatsoever. Worked just like that. As it always does with megan. This is why i know its not a picc problem but a nurse problem. I have arranged with megan that where possible she will do it from now. I asked her about the chemo problem and said if they can't draw blood will they send me for an xray every week? She said no, I wont have to go every week. The fact that the xray showed the picc line is in place will stand for a period of time. Such a relief to go yesterday and get job done without any issues. You're both absolutely right that when it goes wrong its an absolute pain and unacceptable. Oooooh wasn't it a gorgeous day yesterday. Dave went to Blackburn to a friends meal so me and daughter had a short walk, it was too hot, to the plant shop in the park and then back to sit on patio. Lovely day. No, not tidying cake tins eddie, still tidying the garden lol Small steps huh. Not sure if we have rain today so not sure what my plans are. I quite fancy a roast dinner so may do a pub roast. But then daughter may decide she wants to cook if its not so hot. I'll see how goes it. Did any of you see the northern lights? I was fast asleep unfortunately but on waking up received pictures from friends who had seen them. Im sorry eddie that you received awful news, i hope, like you said, you can work things out. Hope you both had a lovely sunshine day yesterday. What plans have you for today. Whatever they may be, enjoy and take care both X

  • Morning Marie, firstly yippee for Megan, must be like seeing santa when you see her and great your going to coordinate with her with appointments, guessing she doesn't work in chemo, though now you definitely know it's a personnel and not equipment problem you don't have to take their bullshit any more. ranting again Marie, this is not me. Fab weather again, but not too hot for me, though i know us gingers are not designed for hot summer days. you do like your walk in the park, wish i had a park on my doorstep. So your having a Sunday roast on the hottest day of the year, how unconventional of you. Quiet day yesterday Sheila and kids all away, so went to allotment for a couple of hours then shopping, bought a sofa from Air Ambulance charity shop, and it WILL go through the door and a coffee table a well. Today up before 6am, walked Poppy then back to bed though will get up soon for breakfast and take it from there. Thank you Marie, my friends "problems" are mine too, will know more soon, will let you know on PM. I'm in bed for 10pm so didn't see aurora borealis, I have seen them before in Scotland, fab. have a wonderful day day with your daughter, take care.

    love Eddie xx

  • Hi Eddiel

    Can't believe you bought a sofa AND a coffee table whilst Sheila is away! whatever will she say when she comes home??

    Kate

  • Hi Kate, Sheila will be delighted, the sofa is pretty much what we both wanted, It was a bargain, the money goes to a very good cause and we get rid of the old one, PS Sheila went to London for a couple of day and decided to stop for 7, I'm very interested in what she's going to say when i see her, LOL. Seriously though Kate recently had bad news about someone very close to me, which will be our focus for some time. take care

    Eddie xx

  • Bless you, Eddie, stay strong.

    Hugs

    Kate

  • Thank you Kate that means a lot to me. Just read your profile again, a year without treatment and still stable, that's wonderful and still feeling fine, though sorry to hear of your time in hospital, have you been enjoying the weather and doing the things you like, best wishes.

    Eddie xx

  •     good evening everyone just been catching up on what you have all been up to while I've been on holiday it all sounds a very mixed bag that's for sure. you were very close to where I live on your holidays, I'm not far from Whitby,had my first job at Flamingoland near Pickering in 1974 and did a lot of underage drinking in the pubs in the area a very fun and misspent youth. I'm going to see Rick Astley in Scarborough in July. I hope everyone has had a good day with a bit of sunshine. I've been awake since 4.30am sadly. Spent sometime in the garden sanded down my garden bench and put 2 coats of blue paint on the seats and table between the seats and next need to paint the frame that will wait until next weekend. Some of it was difficult from my wheelchair but I managed. 

    Take care everyone