Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
we did get the deck chairs out yes lol it was lovely to be sat on the patio in the sunshine, i was nearly asleep. I'm reading Holly by stephen king, very much a fan. I do love my horror and thriller and crime. Your trip away sounds fabulous, i'm really glad you had such a good time. The dinner party dance sounds ace. Youre not the only old fart, im in bed for 9 every night lol Climbing ben nevis!! Strewth that would of been an achievement, really sorry you didn't get to do. Ouch that is an early start, I imagine you have arrived home shattered. I hope you get your appointment over and done with that you may be able to catch up on your sleep. Chemo today and thank you for the well wishes. My only concerns are is the picc line going to work and will they be giving me steroids? Generally they do and with my appointment at 2:30 its likely they will keep me awake. We shall see and I will let you know. Hope you have an enjoyable day and get your rest. Take care X
Thank you annette. I hope the picc line behaves too, we shall see and i will let you know. Wondering if theyre going to be giving me any steroids. My appointment is not until 2:30 and if they do I know they will keep me awake pahhhhhhh lol Ohhhhhh it was so lovely sat reading on the deck chair in the sunshine. So relaxing. Usually end up falling asleep. I love it. Aw thats ace your grandchildren sowing flower seeds. Bet they had a wonderful time. Its a little gloomy here today so guessing there will be no deck chair today lol Hope you have a lovely day. Take care X
Sorry to hear your having problems posting, i couldn't get on at the weekend just thought it was due to where i was at first, but no, your post came 17 hours ago so i was in bed, did try toffee 1st, good recommendation, get some more in 8 weeks when i return, thank you for your kind words regarding my auntie + partner, they appreciate them as do i. take care.
love Eddie xx
Hi Eddie, Home safe and sound! Good. When I pressed reply, my name appeared but no box to write on!
Glad you liked it but still don't know why they call it "toffee" as no chewing involved it just melts in your mouth!
Great you had a good time and the weather Was Kind! It is lovely here today. Please let me know how you get on at hospital!i
Love Annette x
Sitting in the sun is fab, old fart warning, i hope you have sun cream on, Steven King not my thing, I prefer fiction or just studying, Shame about Ben Nevis, just not enough time though i have been up it before in my younger days, haven't always been an old fart, was once a young one, Posted you on PM about your chemo, I hope your home though i know treatment can take 6 hours for some. Sleep well and we can catch up tomorrow, best wishes.
love Eddie xx
Hello Annette, hospital just routine, for me, just a chat about possible treatments, very short chat, my latest EF results (cardio), and a lower urinary tract CT scan and cystoscopy i am having this week. as bladder damage from RT not improving as quick as hoped, though decided a colonoscopy due this week can wait, I was looking forward to that, Also asked again about getting my full hospital notes, fingers crossed. Came back to some bad news today about my best friend which has really upset me, take care
Eddie xx
thank you for your well wishes eddie, appreciate that. Well chemo went well, however, the picc line did not lol Did we not say huh? I had an hour and half wait upon arriving, when they tried to draw blood from the picc they couldn't, they tried for a while but with no success and they then sent me for an x ray to see if the picc was in place that they may be able to proceed with chemo, to which it was and to which they proceeded with chemo. However what should have taken an hour took five hours. Deary me. And still they haven't resolved the issue with the picc. I asked them what they were doing about it but they said nothing as yet. That means when I go get my bloods done this coming saturday im going to have the same problem, tut tut tut lol I was absolutely shattered when I got home, fell asleep as soon as i got in. But feel fine so far this morning, its all good. Sun is shining. Not sure what im doing yet mind. Dave is working so it might be the garden. I shall see. I hope you are well and feeling better refreshed. How did your appointments go? Any news for me? Enjoy your day and take care X
Hi Annette, thank you and the actual chemo went well. However, the picc line did not lol It wasn't working again, they couldn't draw blood and wouldn't proceed with chemo. They sent me for an xray to see if the picc line was in place that they may proceed. It was and they did. But what should have taken an hour took five. Exhausted when i got home. But all is good so far this morning, slept well and we have sunshine. Not sure what im doing yet, Dave is working so it might be the garden. Not that im not happy to do that, love it. I hope you are keeping well? Have you any plans today? Enjoy and take care X
Hi Marie, I am happy you had your chemo and are feeling ok this morning, but these problems with your PICC line have gone too far, It' almost everytime and It's been happening for months, I wouldn't be as patient as you are, it's impacting your physical and mental health, they must know this, rant over. Marie i am ok, break has done me good, no appointments today, so taking my best friend and her kids out. appointments ok, read my last post to Annette, lovely weather here so food shopping first, Sheila in London seeing three shows this week with friends, wasn't invited again. hope you enjoy your day, maybe your daughter will visit and you can go somewhere, take care.
love Eddie xx
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