Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  •   thanks for the welcome, I'm not a frequent poster and tend to disappear at times but I turn up again like a bad penny.

    We go to York quite often although my power chair doesn't like the cobbles much!!Before my wheelchair made it impossible to get into some places obviously the lovely old buildings weren't made to be wheelchair accessible we used to eat in The Golden Fleece pub but that was years ago now.

    Take care

  • Hi EllieKate, you are very welcome, York's great and not too far, The Golden Fleece is still there, never stayed over but had a few meals, I think it's over 500 years old. and I have been to Redcar too, only once, 1977 the queens jubilee day. PS cobbles are very nice to look at but not designed for people like us, take care and happy Easter.

    Eddie

  • Morning Marie, how are you feeling, How did your meeting with the doctor go did he offer any other pain control or useful advice, did you get your radiation therapy on time, I do hope they waited if you were running  late through no fault of your own and did you ask the radiographers if they could help with problems you have due to last weeks treatment. I hope you are feeling better today, having Dave home for bank holidays must be nice for you both Yesterday all went ok, though my masseur phoned her 6pm had cancelled, did i want to come in early, i did, a 2 hour massage great? NO, never again, stick to 1 hour max, family still struggling with a bug so dinner Sunday looks unlikely. Good news, "the advanced cancer focus group" terminals! is making progress, Hallam University are involved, want to discuss what we terminals would want from the group, meeting in 2 weeks. So no plans for the bank holidays and i'm bored already. I do hope you feel well enough to get outside, Happy Easter to you and your family.

    take care, Eddie xx

  • Morning Eddie. So, radiotherapy all went well thank you. I was there the whole afternoon zzzzzzzzzzz lol I got my picc dressing changed, that went well. I saw the Radiotherapy doctor and I'm not really sure why to be honest. She said she needed to know that the tumour hadn't got bigger as that would mean she would have to change the radiotherapy plan. She looked at the scan and she said it hadn't so that meant I could proceed with treatment. I asked her about any new pain relief? And she said to continue taking more morphine. I have reservations about this. Call me silly but I don't want to climatise to morphine as I know I am going to die a painful death and I believe they give you morphine at the end so I want the full effect when I need it. She went on to advise that the morphine I have is no more than the over the counter codeine capacity and that there were numerous other drugs they could give me at the end anyway, so, to stop moaning and get on with it so to speak. She didn't actually say that lol but you get the picture. I'm thinking if the morphine is no different to over the counter codeine why then is it a controlled drug huh? What do you think? Anyway, yes radiotherapy waited for me and the radiotherapy doctor came with me to look at this scan. They called me in pretty quickly. I believe the queue in the waiting room thought I'd jumped queue even though my appointment time was well before theirs. You was right though, the pain is no where near as bad as last week so maybe I don't need more pain relief yet anyway.And I have no nausea. In fact I don't feel bad at all. Just very tired and I slept a lot yesterday and well last night. I will see how I go today. Oh why was your massage not good? Too long? That's ace news re your terminal group. Fantastic work, well done to all involved. Happy Easter to you too. I'm sorry to hear your family are still not well. I do hope you're still not bored and that you have made some plans. I know one thing, I have 4 easter eggs tut tut, with one of them being a rather large caburys one. I'm really looking forward to cracking that open today lol The sun is shining so yes, hopefully it will be out out or out in the garden dependent on how I feel. Enjoy your day

  • oh how lovely that they remain your closest friends. Proper bezzy buddies lol The beautiful north east cost. We went in November 2021, when that storm arwen hit. Wow!!!! Still it didn't stop us enjoying our time there. I loved it. Oooooh you can't beat a good ice cream can you huh. And of course seaside fish and chips. Yummy!! Hope you are well today and a happy easter to you. Have you any plans?

  • Morning Marie another normal, for you, trip to the hospital, I am so happy your feeling better and radiotherapy went smoothly, your morphine dose is very small and, only when needed, so is unlikely to make any difference later. though as you have found even a small amount makes you sleep and lose your "get up and go", attitude. so long term, "unlikely for us" use should if possible be avoided, So your feeling better no nausea and i hope Dave is home and the weather is good, tell me you have plans, Massage too long, i was stiff for a while, though today i feel good and no back pain, advanced cancer group, 11th April, just happy to involved in a small way, family a little better so dinner moved to Monday, so maybe ok. Today been to recycling 3 times, such fun, popped to bakers to get things for Monday, none of it healthy, then in 5 mins off to allotment with some treats for the lads. No Easter eggs for me, don't like them, though i have been given lots of dark chocolate, "medicinal", which i will try to make it last, PS i hope Dave got an Easter egg, have a lovely day, "OUT", i might make some rice pudding for Monday. take care.

    Eddie xx

  •   I hope you had a Pacittos lemon top ice cream when you visited although it's a fair way back to remember, it's white icecream on the bottom the whippy kind then bright yellow lemon sorbet type on top, even in Winter people queue for a lemon top. Then you can get what we called monkey blood on it too which is a thing red fruit sauce. I've never seen the same type elsewhere. We don't have any plans for the weekend. I will be doing a dinner tomorrow and will see who turns up, sometimes our daughters and their partners come to eat with us then sometimes they collect plated meals if they have been busy. My eldest daughter coaches cheerleading and that's sometimes on a Sunday especially if her team are in a weekend competition. Two years ago she completed in the World Cheerleading Championships in Orlando which was amazing and now she's changed from competing herself to coaching and one of the teams her and her friend coach have got a chance to represent the UK in Milan in June which is something they weren't expecting as the team actually came second in the competition they got the spotted at. My youngest daughter is pregnant with our first grandchild due in July so she will be having a restful weekend I think. We might go for a run out on Monday. We tend to get in the car and just see where we land.

    I hope both you , and anyone else reading have a lovely rest of Easter weekend

  • Morning EllieKate  and happy Easter to you, Its always nice when family get together for dinner. your daughter getting to the cheerleading word championships sounds amazing, I do hope she gets to Milan. My youngest daughter is also due in July though with my 8th grandchild but congratulations on becoming a grandmother fingers crossed everything goes well for everyone, and enjoy your Monday drive to wherever you end up. take care.

    Eddie xx

  • Good morning Eddie, hope you are well. Not yesterday but the day before was a good day. Went for walk through the local park to the plant shop to have a browse. Didn't see anything I wanted to buy but it was a nice walk. Also went to the local shops and did a little shopping. But yesterday was a  not so good day. I was in all day resting. Didn't feel too grand again. Usual pain and fatigue. I wish it was the morphine that gave me no get up and go but unfortunately I'm like that anyway not on the morphine lol The tumour has grown and it's quite large now. It affects my upper left hand side. It has an impact on my daily life. Just getting dressed sometimes is immense. Gets me down sometimes. Oh that's great news your family dinner has been moved to today. Fabulous!! I hope you have lots of yummy food. Sounds like you will, especially if you decide to have the rice pudding too. Let me know how that goes. Dave did get an easter egg yes. A Thorntons one lol Between us both we have 4. Also, glad to hear you made the allotment and had a catch up with the lads. That's great. Have a super duper day and enjoy. Not sure what I'm up to. I'll see how I feel when I get up. 

  • good morning elliekate, hope you are keeping well. Oh no we had neither Pacittos Lemon or Monkey Blood. How could we miss this, it sounds so yummy. Next time for sure huh. I hope you dinner went well yesterday. How wonderful that when busy you plate them one up, that's ace. Wow thats fantastic your daughter completing the world cheerleading championship in orlando. Awesome!! You must be so proud of her. And now coaching, that's great. The Milan thing will be fabulous. All these lovely places she gets to visit too. Ohh congratulations on the grandchild. Awww how lovely. That's going to be something wonderful to look forward to.  Great news. Hope you enjoy your run out today wherever you may go. Have fun and take care.