Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Morning Eddie, hope I find you well. That's a shame isn't it, no more groups at Maggies. That Terminals sounds interesting. I would like something like that. Is this at Leeds because it certainly isn't on my Nottingham list. Oooooooh I do so love quiche. And homemade is the best, I hope it went down a treat. My oncologist said this to me, that radiotherapy will make things worse before it makes things better. Sounds the same for you in that you suffered a number of side effects at the time. I'm sorry you had to suffer that. Although, I know you have recently discussed radiotherapy has since been a success for you so that's great news. I went in the garden yesterday. What a beautiful sunny day. I painted a little of the fence/shed. It is absolutely falling apart to be honest and needs to go but a few years back I painted them both blue and it seemed to make everything better lol Plastering over the cracks so to speak. Half the back patio wall is painted too but tipping up that one will have to be another day. It's raining here again booohoooo. The pain is not as bad as it was but it is still there. Still, it's not preventing me from doing things in moderation so that's a good thing right. How lovely a trip to Cambridge. What a beautiful place to be. Why wasn't you invited lol Still I hope you had a lovely dinner with Mandy. Yes, I have seen how many views we get. I wonder why peeps don't join in, it's a shame isn't it. Mind you I just read things and not participate sometimes. Not sure what I'm up to today, Dave is at work, he said hi back by the way. I'll take the day as I find it. What plans have you? Enjoy your day.
Morning Marie, so happy the pain is easing, you do have a terminal's group at Nottingham, Mondays 3pm to 4.30pm it's called, ongoing with cancer, love quiche too but these were to sell, Unfortunately RT damages a lot of good cells while hopefully killing the cancer though only the good cells recover. Most of my side effects are long gone just a minor bladder issue now. You got into the garden, well done, but painting something that's falling down really, booked my head MRI this morning maybe should have booked you one too. Sheila takes her son an daughter in law to Cambridge, has been doing it since long before we met, It's their time together. Mandy and me went to York and had cheese and beer soup, yummy, We do get a lot of people viewing our posts and subscribers too and like you said IT WOULD BE LOVELY FOR SOME OF THEM TO JOIN IN. Dave's away, what' my little mouse up to, must be something, weather's rubbish maybe Maggie's. I have booked 2 MRI's, called my LCN to ask for my MDT notes, and GP as passing too much blood. I am off to allotment will be sat in the shed drinking tea and putting the world to rights,no gardening today then Aurora later to see a friend about the Tshirt exhibition next month, talk to counsellor, not mine, about the terminal group we are trying to start then light exercise group, be good.
Eddie xx
I would really like to do some of the things that Maggie provide but unfortunately I am not able to get to my nearest one which would be Newcastle but I think they are going to do an online mindfulness class soon. I spoke to a lovely lady just the other day who said just pop in if you are in the area but unfortunately all my family work the hours that the centre is open so that's unlikely to happen.
I loved in Cambridge for 6 months in the 80s. I had the best time but had to return to the seaside. I was used to early morning walks on the beach
I hope you both have a good day x
Good morning Eddie, hope you are well. Ahhhh I didn't know that the terminals group was called that at Maggies. That's great. I just don't know how I'm going to feel on this radiotherapy. I mean I'm not taking it very well am I lol I thought I was feeling better, then yesterday I went downhill again. Slept for most of the day. I see the doctor tomorrow before my session so I will ask her as to what other options there are for some pain relief. Ha ha that's funny your comment about me painting something that's falling down lol You're right of course but all I know is it hasn't fallen down yet and it makes it look better. I call it upcycled lol Oh isn't York fab, I love it. Such a wonderful place. Cheese and beer soup ??? Hmmmmm what was that like? I don't think I would like that. I don't like beer taste. I'm an utter bore and stopped drinking 30 odd years ago. I get really miffed when I see steak and ale pie and beer battered fish on the menu in the pub as I can't have it as I don't like the taste. I hope you are okay re this passing too much blood. What did the GP say? Glad you managed the allotment, even if it was to put the world to rights. Can't beat a good rant huh. How did your discussion re the T shirt exhibition go? Hope your light exercise group wasn't a struggle. So, yesterday I felt rubbish again, slept most of the day and slept well last night. Hopefully I will feel better today and manage some gardening, maybe even a trip to local shops. I will see how I feel on getting up. What plans have you? Enjoy and take care.
Good morning Elliekate, hope you are keeping well. Oh that's a shame isn't it, not being able to get to Maggies. I'm the same, I don't drive unfortunately and I'm not well enough to use public transport. I depend on my partner driving me to places that are too far and sometimes he's not available due to work commitments. That's good though that they are doing online courses. Fingers crossed they come up with some more. Ooooh living in Cambridge for 6 months in the 80s, bet that was fab. But you can't beat the seaside can you. Where are you now?
Hi Marie, another crap day for you again, I'm glad your going to mention it at the Dr's tomorrow, lets hope they can help, I know what you mean, ongoing with cancer, I wouldn't have known if I hadn't asked, RT No2 tomorrow then only 4 to go. they do say the first time is often the hardest. Regarding your shed i'm in no position to criticise, my shed at home which is full of junk is covered in honeysuckle lost half it's roof and i never knew, and no I have not fixed it, though the local cats love it which frustrates Poppy. Love York and only a hour away, soup WOW worth the trip just for that, well Marie that's something else we have in common, I stopped drinking about 30 fears ago too. Not seen GP yet, bladder issues, necrotic slough which would be an easy fix if I could have anaesthetic and telangiectasia which is causing the bleeding though may improve by itself, Couldn't make discussion, had to go to hospice, though called a friend and all looks good. Hope you feel better today and get outside, my plans to take daughters out cancelled as they both have a bug, so not sure what I'm doing, best wishes for tomorrow, I hope it goes better for you nd you get some help from the Dr.
Eddie xx
Yes, I will speak to the doctor today re the pain for sure. See if she can come up with some alternative pain relief. I hope you're right that the first one is always the worse. After the dreadful week I've had, I'm sure you can image I'm not looking forward to today at all. And I'm expecting a disaster to happen lol Can I ever go to the hospital where there is no delay etc. For some reason I have to see the Radiotherapy Doctor every week before the session and today my appointment with her is at 3pm. My radiotherapy session is at 3:15pm. It's a 20 minute walk alone from one department to another. I rang them and they said ahhh don't worry just turn up at radiotherapy when you're ready ?? On hindsight I think that was an idiot response to be honest. Potentially, if doctor is running late I may arrive at radiotherapy on closing. I'll ring them this morning. Your shed sounds worse than mine lol Still, I imagine that honeysuckle makes it look perfectly lovely. I hope your problems do improve I really do. Hope you feel better soon. I did get out yesterday. Me and the daughter had a walk to local shops and had a pub lunch. It was lovely aside from the weather, hail and rain but it didn't bother us any. What plans have you for today? Whatever you may be doing, enjoy.
Morning Marie, they really don't make things easy for you at the hospital do they, I do hope your second treatment is kinder than your first, it "often" is. Personally i think seeing your Dr for 10 minutes before RT is good, tell the doctor everything as things you may think are unimportant could be to the doctor, Ask at reception for someone to push you in a wheelchair to radiology, should be quicker though if they told you to just turn up when your ready i would trust them as they will know you are seeing your Dr, and what time and will be prepared for any possible delays. Good luck anyway. My sheds rubbish, but it doubles as my outside fence so it will have to stay. My bleeding is not too sore, see GP Tuesday have a few things to talk about with her,, Happy to hear you got out shopping and a pub meal as well with your daughter sounds great. I am seeing my LCN about last weeks MDT, Cardiologist at Leeds and hopefully some time at Maggies, then a massage at 7pm. Nice to have Elliekate pop in, hope she posts again. Happy Easter to you and Dave, take care.
Eddie
MarieT it was amazing what I remember. I lived in the nurses home and the group I lived with remain my closest friends. I love on the North East coast in a very run down little place called Redcar although there are hopefully going to be some changes to bring life back to the town. We do good ice-cream though.
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