Hi I was diagnosed with invasive lobular breast cancer in September 19, I had a ct scan half way through chemo and it had shown changes in my spine and I was diagnosed with secondary cancer. I’m currently on ribociclib, denosumab, letrazole and zoladex and my scan in May has shown stable disease and signs of my bones healing which I know is brilliant but I’m still feeling so frightened about my future. I feel like I’m waiting to die ( sorry that’s morbid ) and keep wondering how long I have left, I know the stats are outdated and I shouldn’t look but I have and it’s terrified me even more. I know there are lots of positive stories out there now and treatments are improving but I struggle most days and I’m filled with anxiety. Anyone been living with secondaries long term and can give me some success stories? I’ve had no operation so I still have a slight lump although it’s shrunk allot during chemo and now my new treatment. I feel like I should be doing better than I am as it’s been nearly 7 months now but I’m just not. X
Hi lollipop84
I don’t reply in this group very often, but felt I had to give you another positive story, as we are both on similar drugs. I started on letrrozole, but swapped to anastrozole due to side effects. I am also on Zoledex and have recently started denosumab. My tumours have remained stable on the anastrozole and zoledex alone, since 2014. 7 months is still very soon into your treatment, and as you know these are hormone treatments, so you will still be feeling all over the place. It’s like going through the menopause at 100 miles an hour. Hope you have slept well and are feeling better this morning.
Chelle x
