Treatment during the pandemic

Hi @Maz59  I'm so pleased you got assertive and fought for your corner, as you say! It's a sad thing to have to say but we really have to speak up for ourselves until someone finally listens!

The hospices are usually on the ball and I am so glad, at last, you will have someone to turn to!

Regarding your husband, it's time he was assertive too and took over all the household bills etc! When I was diagnosed Stage4 one of the first things I did was start to show my husband how to work the cooker,microwave,washer/dryer, etc etc he is still learning and as far as the TiVo box for the tv is concerned, for programming, he's given that one up because it's more important to be able to cook! He helps or makes our meal every night! Which is amazing. Men (sorry guys) can do more than they let on!!!

I have to say he has really stepped up to the mark re the household stuff. I am lucky as washing ironing etc he has always done and although he prefers my cooking he is not bad himself. He has never liked any kind of fuss and even my daughter says he never pushes himself forward. We had a bit of a laugh the other week when Boris was talking about taking your work home with you. My husband works in a secure mental health hospital and we had visions of him turning up home with one of the clients. My daughter said you better hope not because he will end up with the 6-1 person they have because the other staff will get in first. Thankfully it has not come to that. 

I am sure we will get things sorted and in place I am just worrying too much with all the uncertainty. Hopefully after I speak to them tomorrow I will feel more at peace with things. 

I will write a list before she comes but I guess what we really want to know is will I see any improvement, what to expect as things get worse and any idea of how long. 

Love to all 

I must be lucky because it never occurred to me that my husband wouldn’t step up to the plate. He even washed my hair yesterday and applied a colour mousse so I looked presentable on FaceTime. I’m feeling very fatigued at the moment so he’s doing everything just about. I’m sure all the others will get there in the end. They might just need a little patience.

Hi

I am so glad you fought your corner and have the hospice visiting tomorrow. I really hope they’ll help make you more comfortable and answer your questions. 

Your comments about your husband made me laugh. Goodness. How has he survived this long? 

xx

I hope your visit from the hospice staff goes well, today, and that you get both the help you need now and reassurance about the future.