Cabozantinib sore mouth

Hi

I am sorry to hear how you’re struggling with a sure mouth. I can’t help practically as I haven’t experienced this but wanted to send you a gentle hug 

xx

Morning Daisy,

I'm not on the same treatment, but suffered badly with mouth ulcers & sore tongue on Everolimus. One thing that has helped is using SLS free toothpaste. Sodium Lauryl Sulphate is the chemical in toothpaste that creates the foaming action, but it can irritate oral tissues.

It's made a big difference, I use the Sensodyne one, but there are others. Might be worth a try. Good luck!

Hi Daisy

Have you tried gelclair? It’s a concentrated mouthwash that comes In sachets. The oncology nurse gave me some to try when my mouth was really sore then my gp prescribed it. It isn’t a miracle cure but it really helps. If you use it an hour before a meal it makes it easier to eat. 

Hi maybug 

thanks for that information i’m Seeing oncologist this Wednesday so will ask as the mouthwash she gave even if watered down stings to much