Opting to go to hospice

I missed your question daloni. Yes you can tell the SCT group I am in a very nice hospice. I havent followed the SCT group for some time. Too tiring to keep checking different groups.

Tessa

my dearest tessa, I’m relieved to hear you have been admitted to the hospice as this was your first preference. As a fellow blood cancer patient I respect this brave decision to stop treatment and put your care and comfort into the hands of people who I know from my own hospice experiences will do everything humanly possible to ease your passage. This time is now for you to go back to being yourself, not the patient anymore, just someone who deserves to be loved and respected by your friends and be treated with the milk of human kindness, that’s the only goal of the hospice.

Tessa,

I very rarely post in here as whilst incurable, I am very lucky to be doing alright at the moment. I just wanted to let you know that you are never far from my thoughts. I feel I’ve got to know you just a tiny little bit from the SCT forum. You are very much missed but I understand why you no longer post there. I am wishing that feelings of peace and love and happiness come to you.

Greg

Hi Tessa

I have passed your message along the line. There’s loads of good vibes coming your way  

xxx

Dear Tessa, when I talk to my nurses at the hospice we have conversations that would never take place in a normal hospital setting, the emphasis immediately changes to what can we do to improve your day to day and if that means reducing medications, then so be it. I think when your body has been under the strain of constant medical interventions if almost feels a sense of relief and relaxes back in a more natural rhythm and you feel more at peace, I sincerely hope this is what you begin to experience. 

Dear Tessa, I hope you have had a restful nights sleep, I just wanted you to know I am keeping you in my thoughts, I hope your room is homely and comfortable and that you will be well enough to receive any friends that want to visit.

I want give you a message too.

Yes Johnty lovely room and food. I am being discerning over visitors and only having them if I want them to visit not just because they want to come. Sometimes I can sense their guilt at neglecting me before but that is their problem. Some dont know what to say so its no help to me. Best ones are where we have a common interest to talk about, other than illness. 

I had a hand massage this morning which made me realise how much tension I have been holding in.

Thanks for all your thoughts and messages.

Tessa

The hospice do some wonderful massages.  When I visit my mum, she is always on about Meghan and Harry. She likes them. Thinks change is good. If I was there visiting you Tessa, I would talk about art, the weather of course and just enjoying being with you. The true company is the enjoyment of those moments when we don’t need to say anything. Just sitting there and enjoying the peace.

dear tessa, I hope you’ve had a restful day. I agree with your approach to visitors, this is your time now and you should only see people who are going to add something to your day, it’s not your job to make them feel better. When I speak to my fellow travellers at the hospice part of the joy I get out of it is talking about the things we share in common, as we are ladies of a certain age. Illness very rarely gets talked about as we all know why we are there. I’m glad you enjoyed your hand massage anything that helps you release pent up tension is a wonderful thing to be doing. Have a good nights sleep and embrace whatever is on offer to you tomorrow.