Ribociclib and hair loss

Hi Riamdd5081 sorry to hear about your challenges.

Thus is a general post cancer treatment group so not cancer type specific……

I see you have been posting in the Breast cancer support group…… could I suggest that you put up the same post in the BC group as you will most likely connect with more people who have navigated these challenges.

I’m from the breast cancer group and there certainly are a lot of posts about Ribo.

Early May this year i completed my 2 years on Abemaciclib, a similar drug. I now have just over 2 years left on letrozole- unless the oncologist advises a further period.

My hair thinned quite a lot particularly as the second year wore on. I was a bit concerned as I know some people find this happens with letrozole alone. 
lt is coming back however and similarly to how it returned after chemo the new hair is quite frizzy, in amongst hair that didn’t come out.

By the time I started Abemaciclib my hair had returned and gone from tight frizzy curls to normal and now is doing the same, just not starting from completely bald as with the chemo. 
Other symptoms have lifted too, which were down to abema more than letrozole.

All the best to you- these ciclib drugs are very good for the aggressive, strongly oestrogen fed cancers, but represent a fairly tough extension to treatment.

I was diagnosed in March 2023 and it has seemed like a long haul. xx