How do I stop worrying that I will get lung cancer again. I had a lower left lobectomy in April 24 all cancer removed and no further treatment
Hi Suea and a warm welcome to this corner of the Community although I am sorry to hear about your concerns.
Navigating the post treatment world can be challenging…… I know this ever so well.
For some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of slow growing Non Hodgkins Lymphoma (NHL)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive type of Non Hodgkins Lymphoma was then presenting.
Now 9+ years out from my last treatment my first type of NHL is fast asleep (my consultants words) so I must not go around kissing princesses ….. with my second NHL most likely in long remission but my consultant will never use the word cure.
Going forward is all about living in the moment…. as in reality you just can’t control the future. The mind set we as a family hold onto is we refuse to let the what if’s? define us….. we define the way forward.
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.
Once you have had a look at the paper do come back with your thoughts on it.
Hello Suea,
It's very difficult to stop worrying about lung cancer recurrence. I know the feeling well but can assure you that things will most definitely improve for you over time.
I was diagnosed with non small cell lung cancer (T2AN1M0) in 2014, had my right lung removed in June that year followed by adjuvant chemotherapy. Apart from one minor scare which was eventually found to be of no significance I have been clear of lung cancer ever since, now some 10.5 years later.
It takes time to gain confidence in yourself but after a while, when a couple of routine scans are out of the way you should start feeling much more confident for the future. Trust me, I did.
I wish you all the best,
Derek.
Hi Suea,
I'm in the same boat so to speak. I had surgery for an unusually fast growing rectal cancer in Aug 2024. The tumor was discovered at 12.5 cm barely a year after an unrelated abdominal surgery. The surgeons think they got it all but what terrifies me is how quickly it could grow back if any was missed.
I try to be patient with myself and focus on the here and now instead of dwelling in the "what if" universe. That world is not a good place to visit.
The article linked by highlander is great and I found it really helpful at well.
I figure some worry comes with the territory but I try to remind myself that I fought cancer to be able to enjoy life not worry.
Besides, they say only the good die young. So I'm going to raise as much hell as possible.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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