Managing long term radiation enteritis

Hi toni1,

 I was diagnosed with radiation enteritis in April this year.

I rang my GP and I was referred to a dietitian. I am now on a special diet. The list of foods you are allowed to have and there is also a list of foods to avoid is comprehensive.

 I would advise you to contact your GP and ask to be referred to a dietitian, plus you may need vitamins and nutritional supplements. Plus your GP may refer you to a Gastroenterologist to help you manage your symptoms.

 I am sorry I can’t give anymore information than I have, as I am not medically trained and I think it would be a good idea to speak to someone who knows about you and your circumstances. Please also ask your GP about any safe alternative therapies too.

Wishing you luck,

Lisa

Thanks for this, Lisa. I will speak to my GP (when I can get through!)

Toni x

Hi toni1,

Your GP is the best starting point. I do agree about getting through.

The dietitian will help you and will a gastroenterologist. I would also ask about treating the enteritis side of things. I am not on anything for it but I do believe there is some form of medicines but you do have to ask.

Sending you good vibes,

Lisa x

Hi toni1 and welcome to our little corner of the community. I am pleased that Lisa LisaCardiff has picked up on your post and given you some great help.

((hugs))

Hello toni1,  

Did you speak to your GP? How did you get on?. I forgot to ask you, when were you diagnosed with radiation enteritis? Sorry if you think I am being nosy.

I called the health centre. They have a dietician. He is going to call me ASAP. I was astonished how easy that was and feeling rather stupid that I didn't think to ask before now. 

I finished treatment 10 years ago and the symptoms have been creeping up on me over the last few years. 

The consultant radiology person said she would refer me to the gastro team if I asked, but I would rather try to manage it through diet (and loperamide) and avoid a whole raft of tests that'll probably tell me what I already know.

I will keep the option in reserve I guess.

Well done Toni, see the benefits of being in the group

Hi toni1,

Well done (for getting through) and hopefully the dietitian will contact you soon and get something sorted for you.