I found not eating after 6pm helpful regarding sleep. For a while in the early days if I stuck to the above meant I only got up once in the night about 2am to empty the bag.
For some unknown reason it helped if I didn't look at the clock to see the time.
As you mentioned getting five or six hours of unbroken sleep is bliss. I often suffered with pain in my stomach which usually meant an adhesions flareup. I was advised by stoma nursing staff to take co-codamol. This worked threefold; It offered pain relief, slowed down my output and helped me sleep. I'm not advising anyone to take this medication. Professional medical advice is vital. This medication is codeine and paracetamol combined so needs careful monitoring.
in the early days I didn't eat any nurses ( or nuts - loved the spell checker word) apart from projectile nutgate. I can now eat nurses (nuts) but I make sure I chew them thoroughly. I do have a colostomy now though which is more forgiving than the illiostomy was.
Kath
"don't think about tomorrow"
For many years I took eight loperamide a day. Two half an hour before my three main meals and two at bed time. I took advice from my Stoma nurses.
For some people eating more small meals a day than three large one's work. It can be trial and error but you will get there.
Kath
"don't think about tomorrow"
hi Court, it doesn't feel like hard work. I kind of want to reach out to all those with cancer and envelop them in a comforting, warm hug.
When going to theatre for an op or procedure, and before I went under with a General I always held on tight to a Nurse's hand which comforted and reassured me. - it was a bit like that. I would flirt outrageously with the Dr's involved in my op. - Still not sure why I did this as ithis wasn't 'me'.
Kath
"don't think about tomorrow"
I appreciate the contact .. i’m struggling with the fact that my wound hasn’t healed yet after 10 weeks … keeps opening up again and it’s hard to get medical advice as they’re so short staffed . A m pal has suggested dressing with hydrocolloid and so have been but hasn’t worked yet. It’s right next to the stoma but at least not under the bag
Nick,
Is your wound from the keyhole surgery you had?
Or is it an incision wound, as I think you are able to have phone consultation from your hospital or your stoma nurses could take a look.
Mine saw me as emergency and helped greatly.
Hope it improves soon.
best wishes
Artsie.
Ann
Artsie - I'm so sorry to hear you've had bad news about your husband. Sometimes I wonder just how much more a soul/body can take. Sometimes just breathing in and out is all we can manage.
I recall an incident when I was in hospital with kidney failure. I also had gout in my Left big toe. Immersing my foot in cold water was the only thing that helped. Nobody could offer a solution so I filled one of those thick cardboard urine affairs, filled it with cold water and stuck my whole foot in it (this offered some relief). In the morning the nurse got a horrible shock when she pulled my curtains back as she thought I'd slept all night with my foot in urine. It did make me laugh seeing her face.
Kath
"don't think about tomorrow"
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