Hi there, I need some help and advice please. I have had Crohns for 33 years and an Ileostomy since 1995. Over the last few years my stoma seems to have receded a little. This can cause problems with leakage. Just lately I have leaked so many times that my skin around the bottom of the stoma is badly burnt. This in turn causes a vicious circle. Sore skin, pouch will not adhere, pouch then leaks, sore skin.......and so on. I do use Brava skin protection and Orahesive powder but when the skin is this burnt and sore nothing works. I can change my pouch due to leakage, up to 7 or 8 times a day. Anybody have any suggestions, I would be most grateful. By the way reciting the stoma is not an option.................I’m a coward and can’t go through all that again. Thank you
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007