Mums finally home from the hospital!!

Hi Moomin95 and welcome to our group.

I’m replying as the community champion for this group, but don’t have the right experience of the same situation with your mum as I have a permanent colostomy and urostomy and didn’t have chemo afterwards. Others will come along and reply who have been through this, I’m sure. All best wishes to you and your mum going forward.

Sarah xx

Which chemo is she having.?.I have a permanent ileostomy and had 4 rounds of capox.it didnt affect the ileostomy at all.

Kath

I’m not sure. I know her ileostomy is permanent though. Because the tumour in her colon blocks anything getting through, she couldn’t eat without pain unless she had the ileostomy. 
The original plan to was give her chemo and then operate to remove the cancer in her colon and liver! But the cancer isn’t on her liver, it’s in it. So the plan now, is chemo to shrink them and then manage it. They’re not going to remove it. 

I’m worried about how the chemo will affect her as a person  I don’t want to watch my mum slip away from the person she is now. She’s only 58  

I didn't get my ostomies until after chemo but I've seen people who were given temporary ileostomies prior to treatment to make it easier for them. So I don't think the ileostomy will be a problem. She needs to be careful about staying hydrated. 

I experienced nausea, fatigue and brain fog from chemo. The brain fig clears when the chemo ends so it isn't like slipping away. 

You may get more responses from thehe bowel cancer board. People here have had a variety of cancers and the chemo treatments vary. It would also be helpful if you knew what kind of chemo she is getting.