Hello,My mother is 77 yr old.She was diagnosed with follicular lymphoma ,she had to do 6 rounds of strong chemo ,cancer was gone by the 3rd round wished we and doctors had sense to stop chemo then. by the 4 month she started going down not being able to walk far and no appeitie ,we knew chemo was why ,but we chose not to do the last treatment ,something wasnt right ,by the next week she was in congestive heart failure and septic ,she had a absess on bowel caused from diverticulas (she always had a mild case in the past nothing crazy ),they used antibotics to shrink ,but doctor on call wanted to go in ,by no staff on weekend so they waited, so doctor figured antibotics was working .So my mother was in hospital from July 14 till Aug 1st.Came home with a TPN bag because she was malnourished from the chemo months earlier ,she had no appeite.
I lived with her noticed a week later her belly looking swollen went to ER Aug 8th her bday sat for 6 hours ,got a room after 2 days in ER no beds ,did test thought she might have a block apparently didnt see anything was sending her home a week later on a Sunday l ask doctor that was discharging her could he please take one more Xray and sure enough a blockaged and she had emergency surgery And she woke up with 2 bags One is a loop Colostomy and the other a Mucous Fisluia l believe that one is what the name is just occasionally has muscous come out the other is liquid to pudding consistency.
She was very depressed after seeing bags and scar ,surgeon put stomas very close to incision ,and feces was going into incision right before it was almost healed and she got sespic again this time she almost Died was in ICU for weeks and was moved up stairs ,waiting to be going to a Rehab center ,Basiclly a nursing home which was horrible .So now mom was brought in Aug 8 th to Sept.15th at the hospital ,Was brought to nursing rehab ,but they did nothing she was there to learn to walk again since she was in bed the whole time ,l finally took over changed her wafers the nurses did nothing l caught that her incision looked like gettting infected which they biospyed and it was ,gave antibotics to clear before it got worst ,finally l said im takin my mom home and will rehab myself that last 1 week they statred getting her up ,l believe they wanted my mother to become a resident ,and they realizes l wasnt going anywhere ,l went there everyday after work and cleaned her up and brought her food ,So long story short ,Its time where my mom wants to be reverased ,the Surgeon gave us all these scary things that can happen during and after surgury ,l guess this Surgeon is the best and he said hes done worst surguries what ever that means and now l dont want her to do , l do want her to do though but im so scared and so is she ,He had her do a colonoscopy ,but he wasnt able to do because he mentioned scar tissue and didnt feel doing another one would matterr .
l do blame chemo ,neglect from hospital and nursing home ,she was at a bad state to begin with but now shes healther and chemo free and cancer free .She had the surgry bags Aug 15 th and it took months for incision to heal l had to pack it and everything ,so just nervous to have to do all over again..Her surgery is May 1st /23 and not sure if we should cancel and wait ,he told her just to think about ,l know doctors have to tell you all the bad ,but l wished he mention the good as well ,he never said he wouldnt do or didnt suggest the surgury ,but l felt like he wanted us to read between the lines.We were so excited to do the reversal The loop colostomy the doctor said small surgury ,but the other bag that goes to anus reattaching is the bigger 2 or 3 hour surgery So ,im wondering did anyone go through the same thing or chose to do or not do surgery and do you regret your deciision ,thanks
I’m sure she’ll feel better with the tube out. Every little thing is a step in recovery.
Sarah xx
