Hello
I've been living with a stoma for 2.5 years, following cancer treatment and surgery for renal cell carcinoma. I'm finally in a position to consider reversal and would very much like to do so (it doesn't play well with EPI and regularly gives me issues), surgeon is on board but emphasised that I need to consider the risks carefully.
Specifically: I am adrenal insufficient as a result of immunotherapy which means that I take steroids daily to replace the cortisol my body can no longer make naturally. The dose I take is physiological and tailored to my particular needs. It's not high dose.
The concern is that steroids of any level increase the risk that the anastamosis will leak. Without a spleen, also lost during surgery, I'm at further risk in a scenario that it doesn't take.
So here I am, looking for others who've been in a similar situation. Has anyone chosen to have the reversal or had surgery on their intestines whilst also being on permanent steroids? What did they do to manage your risk? Did it go smoothly?
Thanks for reading
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