Hi, I'ma relatively newbie to stoma care, I was using Dansac, given to me by the hospital that I had my ops at, but I live in a different area, and my local stoma nurse gave me 2 different bags, they both have foam seals, turns out I'm allergic to the adhesive, I have a very red, angry and very itchy rash. I've been to most suppliers for samples, but only had 1 company who has delivered any. I don't have a prescription set up yet, and I don't know how to set one up. I see my stoma nurse on Tuesday, and she said we'd set one up, but I don't know if they have the bags that don't make me come out in a rash. Can anyone give any ideas of suppliers who have some bags with hypoallergenic seals? I was using Dansac, which were ok, I have to have a convex bag. Also is anyone using the 2 piece bags, I don't have much output each day, so thought these would be ok, any help and advice would be greatly appreciated, I feel like I'm drowning, but because I'm not being given advice from stoma nurses, and then I'm lost when looking online and ordering samples. I don't know what to do, and am also 4 days without any output, usually I get some each day, so a bit worried. I've had some orange juice, which gave me diarrhoea, but as of yet, still nothing. Thank you for any help, it would be greatly appreciated. Rosie
Hi
I use a company called Securicare ro provide my pouches on a regular monthly prescription which they organised with my GP.
I prefer one piece Welland drainable puches with manuka honey, which work well (never had a reaction or leak) and provide easy manageability and an added benefit of being able to monitor the output as theyre clear.
I use clinimed adhesive remover and LBF barrier wipes to prevent reactions.
I cant speak highly enough of Securicare and their professional and respectful staff.
Hope this helps
Richard
Thanks, I will take all the advice I can, but my stoma nurse says I have to go through her for any changes to my prescription, I have Dansac 1 piece closed pouches, and some AcuBond straps, they're flanges, I have sensitive skin, but not much sticks to me, I have fentanyl patches, and have to put hyperfix tape over them to stop them falling off. So I'm thinking that if the flanges bring me out in a rash, I'll just use hyperfix, it's not that expensive. I just feel like I need more info, I did get some samples of thr manuka honey bags, and they were good, but the Dansac ones suit me better. As I said, a nurse has only seen me change the bag once, 5 days after surgery. My local stoma nurses haven't watched me.
Hi Miss Tee, I wasn't aware that one had to be "tied" to a stoma nurse, I'm not tied to the hospital team I would refer to! It's a free country - see if you can make your own enquiries and make use of all the stoma fulfillment suppliers, and also the Colostomy Association, a very good charity. You are a new user, and of course you will be apprehensive. But you know what suits your skin (and your insides), and it is a long learning curve. Stomates might tell you they're still learning (I am, after 20 years) so do what's best for you as it's you that has to live with it, and live a good life. All the best, Sharon. X
I don't know if I'm tied to them or not, I can only repeat what she told me, as I said, she makes me feel like a child, and brushes my concerns away very quickly, there's another nurse, she's lovely, I've seen her once, but I find it difficult to get to her, I think she's part time, and she came to me, she was the 1st nurse to see the stoma after I'd been home 2 weeks, I hqve been looking at samples, and ordered some, but its difficult when you don't know what half the things do, one of the suppliers that I asked for samples, they included a wee bottle of stoma power, as my skin was angry and itchy after the bags I tried from the stoma nurse, they said they'd included it cos my skin was angry, but I don't know what to do with it, how does putting powder in the bag translate to helping the skin around the stoma? I have a lot to learn, but I've always been up to a challenge. Thanks for the help. Rosie
Hi Rosie, Well, if you receive an item check for guidance on the label, and if that's not helping then just ring them! See, when you make contact they will respond in kind and offer to help. There are so many items these days available to help us manage, it's something else to learn about. I get erratic output (......keeping language clean!) and I was sent a little tub of silica parcels (like those tiny things you find in boxes to soak up damp) which help solidify. I imagine the powder inside the bag will coat the skin, forming a protective barrier. For that problem I use LBF wipes occasionally. Rosie, there's always a way round. Chin up girl x Sharon x
Hi Rosie
The stoma powder is for your skin round the stoma, but use it sparingly. Don’t put it in the bag. No-one is tied to any company or nurse in the world of stomas-it’s your choice, but of course they will try to keep you tied to their preferred company and supplier.
Sarah xx
Oh, and I forgot to add, the best thing I have found to do when my skin around my stomas was raw was to put a little calamine lotion on a cotton pad and wipe it gently over your skin. It soothes and calms and you don’t need a stoma nurse to get it! Make sure you let it dry thoroughly before putting on the bag-if I’m impatient I dry it off gently with a hairdryer on low setting.
Sarah xx
hi Miss Tee the company I gave always used (11 years) is Securicare. They are the best company I've ever used for anything. Professional, efficient and kind.
Kath
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