Stomaversary!

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Dear Friends,

It's my one year stomaversary.  Had my APR surgery because of a very low small rectal tumour a year ago that resulted in a permanent stoma.  Very successful, got rid of my cancer.  But the operation itself was fairly traumatic and I had a huge amount of pain afterwards which was a shock.  I am now physically healed up but as I have approached this one year I have had flashbacks to it and have been very tearful.  Am outwardly (to friends and family) coping well and get by with finding the funny side in it all, but underneath have recently been struggling.  Has anyone else experienced this?

Jane xx

  • Thanks Ann-just wish I wasn’t so nervous! But my partner isn’t feeling very well today and it made me realise how absolutely trapped I am while they were having a sleep this morning. I can’t even leave the room myself, but we did manage to get to breakfast before exhaustion set in and the need for that extra snooze.

    The hotel has just delivered another plate of chocolate covered strawberries and an ice bucket with yet another bottle of fizz to the room so I won’t starve! This is the third bottle of fizz they’ve brought, plus a bottle of red, in addition to stocking the mini bar each day with beer and soft drinks-we are running out of room for more and haven’t drunk any so far! Joy

    Sarah xx


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  • Sarah 

    Its lovely that the hotel are thoughtful but they probably don't realise that fizz is the last thing Boris needs or Donald for that mater. They will swell. The strawberries sound lovely. 
    I hope your partner feels better soon.

    It must be so frustrating for you and you’re allowed to be fed up with it. 
    Sending you a hug xxxx

    Ann
     ‍Art

  • Hi Ann,

    Yes, Karen did say she was going too, we were along with millions of others! We went into Central London on the Sunday, the children were told they could lay their flowers that day! They would have had to be there at the crack of dawn to do it, it was so rammed that my son, with me in the wheelchair, took one look and turned back! It was an incredible sight for a incredible, beautiful lady! We had breakfast  while the one minutes silence was on, you could have heard a pin drop, it was so touching!

    Back to the here and now, it probably is the COVID that's caused the changes seen on your scan, from what everyone is saying, the nodules are quite a common occurrence! Doesn't stop you worrying though! I must have used loo roll a bit too hard last night, cut myself and started bleeding! The skin down there must be like tissue paper!

    I love the thought of little Whoopi, curled up asleep, for some reason, on a daisy!

    I hope you manage to get some sun today, up here in the North, the heating is on! Terrified to do that too, the price of everything!

    Take care,

    Moira x

  • Thank you for the hug Ann! I just get frustrated at how limited I am nowadays, but of course I’m grateful to be able to be here and enjoying the warmth. 

    Can you imagine my bags if I drank all that fizz???! I have this vision of me taking off from the balcony straight into the sea! Joy

    Sarah xx


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  • Hello Ann,

    First congratulations on working through your reversal.  I've been following all your posts.

    Second, I have lung nodules - diagnosed eighteen months ago along with the other cancers.  The nodules did nothing as reported by the scans I had up until the end of February this year; I've no reason to think they've done anything since.  When I do my count-up of cancers I give them a half-point, making it 4.5 cancers of varying impact (two big, one small, one tiny and the nodules possibles).

    Should yours become 'active' in some way I'm sure your team will be onto it pronto and the impact will thus be minimised; but as others have said they just seem to be 'there' like internal moles.    

  • Hi Bagpuss the Third 

    Thank you for your encouragement with my reversal the bowel training is going very well and hopefully it’ll continue.

    The wound is healing so I have some much to be upbeat about. 
    The letter hit the stuffing out of me however today I believe it’s from Covid and will park that. I can not let it spoil my day. When it creeps into my head I smack it out again. It sounds though you have a similar way of dealing with it but you do have more to manage than me. 
    The suns shining and I’m in it. I do love the sun even under a parasol is lovely  

    Hope your having a good day 

    Thanks again 

    Ann
     ‍Art

  • Glad you're enjoying the sun.

    I think my attitude to the nodules comes from teenage years dealing with old cars.  If the latest wreck hadn't got a wireless, get one from somewhere.  Either way you could turn up the pirate stations full volume and mask that ominous knocking from somewhere in the works.

  • Ha ha Sarah I  can imagine you floating away like a double hot air balloon as I once and only once had a craft ale. Now it was my husbands but he did say I could have it. Oh it was delicious and I spent the evening sipping at it by bed time it was gone. Only one bottle. 
    I awoke at two with this weird sensation like pulling when I felt down Whoopi had turned into a air filled brick. I had to carry it two handed to the bathroom to deal with it. Twice more I was up. So I do know what you mean. 
    I’m sure that beer was fermenting after I drank it. That yeast was proving. 
    Definitely stay away from any fizz or craft ale 

    You are allowed to grumble same as me. That’s what keeps us going. 

    xxx

    Ann
     ‍Art

  • Ha ha Bagpuss. 
    I once drove my old A80 to work that seemed to be making more noise than normal I turned up the volume of my radio. I pulled it into the car park where smoke appeared from the engine I ran in to get the extinguisher it fizzled out. 
    Not really thinking only afterwards I realised I should have stopped the car and NOT driven it to work as I worked in a SCHOOL with three hundred children. 
    Whoops! 

    Ann
     ‍Art

  • That's interesting. I'd never thought of 'live' ales working like that.  Like so many things, only obvious when you see or hear about it.  I don't think you need to stay away from 'craft' ales as such, just ANY ales marked 'bottle conditioned'.  White Shield Worthington is (was?) a widely available example of such an ale.