Dear Friends,
It's my one year stomaversary. Had my APR surgery because of a very low small rectal tumour a year ago that resulted in a permanent stoma. Very successful, got rid of my cancer. But the operation itself was fairly traumatic and I had a huge amount of pain afterwards which was a shock. I am now physically healed up but as I have approached this one year I have had flashbacks to it and have been very tearful. Am outwardly (to friends and family) coping well and get by with finding the funny side in it all, but underneath have recently been struggling. Has anyone else experienced this?
Jane xx
Hi Ann,
I honestly don't think the dread ever really goes, do you? Look at when I had the liver scare a few weeks back, I knew it was a possibility, but it still knocked me for six! After all the worry I was ok and I'm sure you will be too, but is it worth asking for the scan to be brought forward? 3 months is a long time to worry about it! We can't ever seem to relax, we're always looking over our shoulders, waiting for the next thing to creep out at us!
I'm fine, back from London where Brooke was wonderful! My oldest son kept looking puzzled when I mentioned Brooke, I'd forgotten to tell him my stoma had a name! It was a strange time to be there, heartbreaking but uplifting at the same time!
Take care Ann,
Moira x
Ah Moira I thought of you on the 19th I think Karen was there too
I watched it from early until late. What a spectacular event , the soldiers got me they looked so proud and respectful, she definitely deserved that for her service.
Incredible Lady and a wonderful life.
Did you manage to get about okay. It looked rammed?
Im really pleased that Brooke behaved. It’ll give you confidence to book another trip.
I’ve changed my avatar, I did it almost immediately Whoopis staying just in sleeping mode. It amuses me.
Thanks for your kind words
I think it’s three months to see if it changes I have had Covid in June it could be that
take care
xx
Ann
I know Kath
I was living such a positive existence life always slaps me back, however I will be fine. It’s really helped sharing it here I can’t tell my family they don’t need to know unless it needs treatment.
My hubby knows and thinks it’s just a precaution. I will put that Cancer Ghoul back in the shadows tomorrow and hopefully sit in some sun and find some fun
Ghoul is a really good description of Cancer.
Thanks Kath.
Ann
Goodness me Ann, there’s always something isn’t there? It is very common to find lung nodules which are nothing to worry about, so hopefully this will be the case, and I’d take comfort from your consultant not being concerned. Many people have them as a result of a previous infection or scarring, so please try not to let it get to you too much. I know we naturally panic though, so appreciate it’s hard not to overthink.
Sarah xx
Thanks Sarah.
I was concerned yesterday that it hadn’t shown on my last CT however I had Covid testing positive July 1st so it may be from that. Anyway that’s what I’m telling myself today. Covid not Cancer.
I can’t worry about it right up to Christmas.
Three months wait then a month for results if I’m clear.
I am going to delete that info in my head right now.
How are you?
Do you like my adjustment lto Whoopi she’s now asleep
Ann
Could well be a result of covid Ann. I smiled seeing your new Whoopi-and the daisies for when you get your tattoo! Very good.
I’m ok thanks-bit cool in Majorca this morning, but bags going well is the main thing. I had a mobility scooter delivered to the hotel which doesn’t fit in the lift, but the guy brought me a collapsible wheelchair too, which does, so I suppose it’s the best of both worlds, but I’m not the world’s best driver when out and about! I have a new appreciation of the difficulties faced by disabled people now I am one myself. It’s hard.
I hope you are continuing to go from strength to strength since your op and not missing Whoopi too much!
Sarah xx
Sarah you really go for it. What an inspiration you are Majorca in September. Probably the best time to go. Schools are back and the Spanish like August.
Get yourself some some L plates think they have green in Spain. Give pedestrians chance to get out of the way
We hired one at Asda once for Mum. We were running after her apologising to other shoppers she actually enjoyed it she was laughing until she collided into their shelves that stopped her fun , put her in the wheel chair from them on until we bought her one for Christmas and trained her in an empty car park
Ann
I’ve only been out on the scooter once Ann-I’m such a scaredy cat, and there are so many obstacles-trees growing out of pavements, high kerbs etc. I’m just frightened all the time. So we have been in the hotel and I can get out on the terrace, to the sunbeds, pool and the restaurant in the chair. But I do appreciate how lucky I am to be able to come away again. It’s just very frustrating not being able to do anything unless I am pushed in the chair. Sounds like I could do with scooter training-that sounds like a very good idea!
Sarah xx
Sarah you’re doing fantastically
Spains treacherous for pedestrians and the drop kerbs are round concrete bulges.
Maybe you will find a safe path they do have lovely walks that you maybe able to enjoy. We met up with someone who has M S and she was really anxious about the terrible paths but now she’s a regular visitor to Costa Blanca she’s got her own scooter. It’s just finding the best routes and help using they’re ridiculous dropped kerbs.
There’s no rules in Spain.
Where there’s Blame make a Claim
They're rules are
Where there’s Blame look where you’re going!
I have problems crossing the road.
Enjoy your holiday xxx
Ann
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