Travel advice

Hi OceanB

Well done on planning an overseas trip! I have a permanent colostomy, and a urostomy and I travel overseas as often as I can  so I’ve learned a lot.

This is what I do-

look out the supplies you think you will need depending on how long the trip is, and double it. If you’re going somewhere hot, you may use more due to the heat, swimming, and change of diet. 

Carry supplies in your hand luggage-I have used the free medical allowance on some airlines to carry an extra bag on the plane as hand luggage, but usually just carry a wash bag in my hand luggage with enough for several changes in case of delays. My partner does the same.

If you are going with someone, split your supplies between the suitcases in case one goes missing. Each person carry enough for the whole trip.

Carry a change of clothing in your hand luggage-I have needed this when my bag leaked before I’d even got inside the airport on one occasion!

Make sure the bag is empty or you change it before you get on the flight.

My bags get picked up going through the security scanner at the airport, so expect to be taken to a private room and asked to be patted down and to show your bag.

I take some puppy pads with me for the hotels, just in case, and for extra protection, especially having 2 stomas.

I have just returned from the Maldives, which is the longest trip I’ve done, but usually go to Europe. I have another 3 trips abroad booked for this year. It becomes easier each time. The first time was very nerve wracking, but I’ve always managed to cope.

Hope this helps, but ask away if you’ve got any more questions. I eat and drink what I want while I’m away with no issues, and just to reassure you- the bag does not inflate on a plane! 

Sarah xx

Hi OceanB

Sarah has given you really great advice.  Can I just add a couple of other things?

If you're travelling by plane try to get allocated a seat close to the toilet.

Take some adhesive remover wipes for the journey (rather than a spray) in your hand luggage (my stoma nurse gave me a handful of free samples, so try there first).  My stoma nurse also gave me some samples of flange extenders to help keep my pouch more secure in case the adhesive was affected by the heat (not needed).  She also suggested using an unscented roll-on deodorant on the skin before applying the pouch as that helps it to stick if it's very hot (didn't try it so I can't vouch for it).

Your stoma nurse or stoma supplies company can also give you a certificate which you can show at security if need be.  It confirms that you have a stoma and is printed in several different languages.  You shouldn't be expected to show your pouch and staff can't confiscate your supplies.

Hope it all goes well and you have a great time!

Hi Sarah 

Thanks for the great advice. It’s great to hear your travel story and that just gave me lots of confidence to go travel as often as you do. 

BTW, did you purchase any travel insurance? Any recommendation? 

Thxs 

Kate 

Hi Buleblue

Thanks for your advice. 

Good tips on the adhesive wipe. I think I have some sample at home . Also I have already requested the travel certificate from my supplier. 

Thxs

I have travel insurance through my partner’s bank account. Initially I couldn’t get cover for my cancer because I hadn’t been more than 6 months clear, but now we just phone before each trip to update them. I would recommend having a look at the travel insurance group on Macmillan for recommendations, and would say it’s always best to phone the company direct rather than try to do it online,

Sarah xx

Oh and I can I just say, that’s some excellent advice from BlueBlue! I always get a seat near a toilet! 

Sarah xx