Coffee anyone?!

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Hello everyone! 

I’m a newbie here in that have had my stoma “cliff” for 2 weeks now and we’re just making friends with each other lol. 

So so far so good, no major issues, in hospital I was eating pretty “square” (Italian” meals either rice or pasta followed by protein (meat or cheese) and some overly boiled veg (mostly carrots) as well as a piece of fruit (either mashed apple or banana). 

Ive been home 1 week and things are going ok, the only issue I’ve had was after a homemade blended zucchini soup - output was very very watery which wasn’t a massive deal but clearly to be avoided. 

Sp here’s the thing... I LOVE coffee like love love love it... my discharge notes say to “avoid caffeine based drinks”... I haven’t had any coffee but man I am craving it! I was wondering if any of you drink coffee with an Ileostomy? I was tntinking what about decaf? Maybe I should just try and see what happens? I don’t actually drink a lot - I literally have 1 espresso in the morning which I usually drink with a bit of milk. It’s the percolated kind so not even that strong.... 

its like I’m asking you for permission hahaha! 

Anyway, any recommendations greatly received. 

Thank you!

sam & cliff :) xxx 

  • Hi and cliff. What you’ll quickly come to realise is that everyone’s stoma is different! I used to regularly have courgettes mixed with tinned tomato’s (yorkshire ratatouille!) although I used to see bits of skin in the bag. Give me a tuna sandwich though and I’d be emptying the bag after each mouthful. Similarly my first cup of tea of the day was ok but my teatime one used to fill the bag as quickly as I was drinking it.

    Im sure Ian will be along with some good advice shortly but I would say - have a coffee but keep an eye on your output?

    Permission to percolate granted soldier!

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember

    Hi Sam 

    As  rightly says all stomas are different and our bodies react differently to all foods.

    The note on your discharge paper should probably read avoid caffeine based drinks if possible but we really are all different and part of the recovery from ileostomy is trial and error with everything to do with eating and drinking so until you try something you don't know how your body and output will react.

    I would suggest you start off with making up a mixture of half decaffeinated and half caffeinated of your favourite coffee brand and see how you get on then gradually try straight caffeinated and see how you get on.

    Caffeinated drinks are prone to making the output watery but so are a lot of other foods so it might be wrong to assume it's the coffee, so it's a matter of keeping a food diary and monitoring your output against your input.

    However if you've been told that you have a high output stoma then coffee is to be avoided as coffee stimulates the bowel.

    As my dear old granny would say "A little of what you fancy does you good" 

    But there maybe another problem you may not like the taste as having an ileostomy or any other surgery can affect our taste buds and something we loved previously now tastes horrible but if it happens to you don't despair the taste buds will sort themselves out very quickly

    Don't listen to Cliff have your espresso tomorrow morning and see how it goes and remember we are all waiting to hear the next installment of this story, will it have a happy ending.....................to be continued

    Ian

  • Hi Strongsami and Cliff. Everyone is different and it’s all a bit trial and error sometimes. I remember a few weeks after my LAR, my husband took me out shopping ( felt a bit like taking his old granny out for a Sunday drive as a treat!) then into Costa for a much needed seat and a coffee. I forgot to remind him to get me a decaf, and by the time we got home I was light headed and had to lie down! Felt a real lightweight. Didn’t make the same mistake again and was absolutely fine.

    So strange what you can and can’t tolerate. I remember having orange jelly one day and it looked no different going in to coming out in the stoma bag, quite entertaining!

    Hope you manage to find a way to continue to enjoy your cup of coffee and anything else you fancy.

    J

  • Hello and

    Thanks for taking the time to reply and for the advice - very reassuring!

    So... I bought some decaf coffee yesterday and percolated it this morning - result! Had a lovely (small) cup of coffee and it went down very well! Ironically I had watery output after lunch so need to look at those ingredients but I was ok post breakfast! YIPPEE!!

    Thanks again, all the best to you xox

  • FormerMember
    FormerMember in reply to Strongsami

    I haven't posted on here before but I've had a stoma for knocking on 12 months now. I drink two or three cups of coffee every morning - cafetiere,fairly strong. I find that it has little effect on my 'output'. On the other hand,chocolate does tend to affect me and create thin stools. Like many a stomatist,I find a few marshmallows,digestives,jelly babies or Haribos thickens the stool pretty quickly.

    I'm sure that you'll find your own regime pretty quickly. I've found that thin output is usually temporary and traceable to a fairly benign source. Basically,try things in moderation and have a bag of marshmallows handy!

  • Thanks for that

    i actually did a blend of caffeinated and decaf in my percolator today and again - no issues! 

    Feeling pretty chuffed at this Blush 

    also I didn’t know about digestives! Good to know - thank you! 

    Have a good evening everybody! 

    S xxx 

  • Hey, my other half had a loop colostomy in Dec 2018 andmade permament in Sep 2019. He drinks coffee every day! Cups and cups of it! He literally eats and drinks as he did before he had his stoma. Xx 

    Nicky 
  • FormerMember
    FormerMember

    I understand this pain, oh my coffee has been a part of my life for years and in the end, I didn't manage to give up it. But the trick that I use, I went deep in the process of making it. I always try something new. So a couple of months ago I bought a special kettle to control the temperature of the water I use. That makes the process longer, but I enjoy it this way. 

  • Nescafé Azera decaff Americano

    i was a serious coffee drinker until I had palpitations, no sleep and was told I had to cut down.  I tried loads of different not enjoying any until I found Azera 

    This is passable I always have drank strong and black this is my go to favourite. It can be expensive we buy it when on offer. 

    Ann
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