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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    Hi all
    Thought i'd pop by & say hello.
    Only diagnosed a week ago with CLL (Chronic Lymphocytic Leukaemia) after a routine bloodtest for my Crohn's disease.
    In a bit of shock at present i guess.
    Have an appointment with Consultant at Bedford hospital on tuesday to discuss where we go from here.
    Informed all my work colleagues but not told family yet, it took all week telling people at work as i didnt know how to do it :( feel a bit less stressed now they know.
    Not looking forward to telling family though.

    Dave
  • FormerMember
    FormerMember

    Hi. I'm a complete novice to this site (only registered about 10 mins ago) and already feeling very emotional at knowing there is something like this to help me on what is most likely going to be the rockiest road I have ever travelled on. 5 years ago my partner was diagnosed with C.L.L. and has been having constant monitoring knowing that at some point treatment would be needed. He has coped brilliantly although I am now discovering he has shared with others and not me his fears and frustrations about when the time came. It arrived 10 days ago and the roller coaster of tests started in earnest with us finding out the course of treatment on 16th Sept. He has sunk into the most terrible depression becoming verbally abusive and notwanting me anywhere near him. I have tried to stay away from him as much as possible except to take him food and drink which he isn't really taking. I understand how difficult it must be for him and I'm not looking for sympathy just an outlet to release my emtions. I have read the great booklert 'How Are You Feeling' and found it to be inspirational! Wish meluck in trying to persuade a very stubborn man to seek extra help for related conditions. Thank God for my wonderful friends, says me with tears in my eyes and a smile on my face. Thanks for reading.



  • FormerMember
    FormerMember
    dear gay, im so sorry, you are having to cope with all this, yes a roller coaster of a ride is right, there are lots of people to chat to here, dont be afraid to ask for any help or support jackie x
  • FormerMember
    FormerMember
    Hello everyone,

    I'm Cherie, 32 and live in the West Mids.

    We found out in June that my step mom, who I've known about 20 years, has got oesopheagal (sp) cancer. She is 52 and I love her to bits. A close friend who is related on my husbands side was there for me a lot when I found out and later confide in me that her 24 year old sister is going through chemo for breast cancer, to say I was shocked was an understatement. Then a few weeks later our daughters godfather who is a very close friend was diagnosed with prostate cancer, he had his op on Thurs.

    I've just got so many things going round in my head at the momtnt and thought here might be somewhere to find out things and get/offer advice and reassurance.

    I look forward to getting to know you all, just wish it was under better circumstances, Cherie xx
  • FormerMember
    FormerMember
    Hello there,
    Does anyone have any advice on how to deal with/prevent bed sores? My Dad has to be on oxygen 24/7 and has to sit up all the time. He sits on a seat all day and sits up in bed at night. He has a couple of sores developing and the Nurse has recommended Sudocreme. This was ok for a while but starting to be a bit ineffectual now as they are breaking out a bit. Occupational therapist recommends an air cushion. There are none available at the moment in our area so I looked into buying one. They cost around £200. Can anyone suggest an alternative or a less expensive type of cushion?
  • FormerMember
    FormerMember
    dear billsgirl, im so sorry about the situation you are in with your dad, first of all i work in a home, we always use conatrane cream(the best) with either cannesten cream or sudo, mixed together, it works very well, but you should really have the district nurses out to put a dressing on the place, to prevent further sore, ask the doctor about this, also as for the cushions, ask the dr about that social services can provide him with this free of charge, and anything else he requires, try and get this sorted out as quick as you can, if you would like any more info on this subject, request me as a friend jackie x
  • FormerMember
    FormerMember
    Hi,
    My dad has Non-Hodkins Lymphoma for the 3rd time in as many years. Each time he fights it but it keeps coming back. I'm so scared that it has spread, he is in hospital at the moment and they have been doing all kinds of scans in the last few weeks. The doctor has told him today that he needs to discuss the findings of the scan with some other doctors and will let my dad know in 2 days. I don't know if it's my dad hiding the truth, he keeps doing that. Anyway, I'm just here because I feel I can't cope with it anymore. I feel like I need to run away and just escape it all but obviously I can't. How am I going to get through the next 2 days, and then the rest of his treatment? I feel like I can't go to work because I can't concentrate, but what am I going to do - sit at home and cry?
    Please help?
  • FormerMember
    FormerMember
    hi all, im wendy and 49years old. I had surgery in may for oesophageal cancer.Iam also diabetic and would love to know if anyone else is having any problems, as i seem to be struggling on a daily basis. I would be very grateful for any advice or just to chat and see how others are getting on.

    All my love to everyone x W x
  • FormerMember
    FormerMember
    Hi everyone, Im so sorry to read all of your stories and terrible things you are going through. Im new here.

    I was diagnosed with cancer 6 months ago and after some treatment was given the all clear (for now). On a recent check up it looks like it is back and I have had some surgery to remove the cancer from my scalp today. I am not coping so good with it this time and I feel like my partner is coping even less. I feel guilty for being ill and I feel like hes mad at me for being ill and to tell you the truth would rather just deal with this on my own! I guess I just want to hear that this isnt unique! Im sorry for the feel sorry for myself post but I really am a little lost.
  • FormerMember
    FormerMember
    dear sam, im so sorry you have to try and cope with all this, it is very difficult what you are all going through, the only thing i can say really is just take it step by step day by day, its very hard i know and ive been there the same as you, its on your mind 24/7 has he got a macmillan nurse? he/she may be able to help all the family and advise you, but you can contact mac on the home page and they can advise you jackie x
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