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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    dear superkingsize. im so sorry that you have had to come to this site, but glad you have, there are many people here, that will help and support you, i cannot help you with your questions, you have asked, have you tried the cancer backup site? type in your relevant cancer, it might bring up in the info if there connected in some way, good luck with your search, in the meantime, someone else may post you some answers, but i didnt want your post to go unanswered love jackie x
  • FormerMember
    FormerMember

    Hello,

    Can I say this is an amazing site, I've been reading posts for the last week or so and the people here are so brave, it has given me support. I'm new to the site and very scared. My best friend has just been diagnosed with four tumours incl brain and bowel, I've put all the info in my profile as that seemed to be the advice from the regular contributors. I don't know what to do as I don't have much detail around his diagnosis and we can't talk often or for any length of time. The information he gives me just gets worse and worse, I've only known he has cancer for just over a week and it's gone from normal happy man bouncing through life on a positive enthusiastic note (lets just say his cup wasn't half full he always acted like it was overflowing even though he has had challenges like the rest of us) to disappearing for a week to telling me he has four tumours to he has a place in hospital for brain surgery to the cancer in his brain is inoperable and fatal. I think he is a little confused too as the biopsy hasn't been done yet and I've been told that much of the diagnosis is speculation until the biopsy gives the facts. He hasn't told me anything about any next steps in terms of paliative care.

    I'm very scared as he wants me to give him time for me to be acknowledged as his friend by his family but I am not sure we have time if the prognosis is weeks or months. I rely on his texts to tell me how he is but I am acutely concious of not putting any pressure on him to see me or text me and that there is a strong possibility that he won't be able to text me as time progresses. I've no idea what sort of time frame that will be and I am terrified that there will be a time when he doesn't text me anymore and I don't know what is happening and then someone will text me to tell me he has passed away. I am currently off work and am not sure I could cope with being there at the moment. I haven't accepted he has cancer yet and my head can't keep up with the speed of what is happening. I don't think I realised how blessed my life was before this brutal disease came into it. I feel so lost and scared and he makes up 90% of my life and I can't imagine it without him. He has done so much for me. I can't sleep or eat and I just want him back safe and well. I am going out of my mind with worry. He is being very positive and tells me he is fighting it all the way. I just can't believe this is happening. Looking at the tags for bowel or brain is confusing as I don't know the detail around his cancer and so I don't know what information I am looking out for, there seems a lot of medical jargon I can't relate to. Even though the biopsy hasn't been done this all just feels like a done deal and that the journey is going to be a very short one.

    I'm sorry this was such a long post and thank you for listening,

  • Hello, Hinckley, whew, what a difficult situation to be in......you have my sympathy! This cancer journey is tough enough without never being sure what your dear friend is facing, and also not knowing if his family know about you, too. Usually the cancer journey is a bit like an unpleasant roller coaster, but you seem to have it even more difficult! But well done, you, for sorting out a profile, it does help as you won't need to repeat yourself. I guess I can't really come up with any concrete help or advice, but am sending you my very best wishes, hang in there! and do keep posting, the site is really good for support.....if and when you know more, you'll be able to join a more specific thread, even though as yet you don't know too much about the exact tumour or stage!

    Moomy

  • FormerMember
    FormerMember

    My wife and I have been to visit my father today, He is suffering with Pancreatic Cancer. Its so sad to see him so helpless! I feel so totally useless because I cannot help him. I believe he is in the last days now. Today I held him in my arms and kissed him, told him I love him.

    A man who, an ex squaddie, a big man of 17stones is reduced now to a man of less than 6stones. A very smart, upstanding man, a man I am proud to call - My Father!!

  • FormerMember
    FormerMember
    dear dunc, im so sorry about your father, theres nothing anyone can do or say that will make a difference right now, im sure your father is proud of you to! make the most of him, make the last precious moments count, thinking of you jackie x
  • FormerMember
    FormerMember
    Hi.
    In May mum was diagnosed with lung cancer which had already spread to her bones in her spine. She had radiotherapy to reduce tumours in her spine and started chemo. She only had one chemo and became really ill and now they have said she isn't strong enough for chemo and has around 6 months. We can't take it in and don't want to believe it.
    What alternative treatments have people tried and how can we prolong her life? Has anyone heard about Laetrile, which is found in apricot kernals? Apparantly it can shrink tumours?
  • FormerMember
    FormerMember
    hi miggymoggy, im so sorry that your mum has been diagnosed with lung cancer, this is a very trying time for all your family, i dont know much about alternative treatments for cancer,and i dont know how you can prolong her life! but the only thing i can say to you, is be there for her, spend as much time together as a family that you can, thats all you can do, thinking of you, my very best wishes to you all jackie x
  • FormerMember
    FormerMember
    Hi everybody another newbie here to add to the list hope everyone is feeling ok could really do with a chat if anyone is available need to talk about my dad and his cancer. I look forward to hearing from you. Jo x x x
  • FormerMember
    FormerMember
    dear jo-anne, im up for a chat, if you would like one! welcome to the site, jackie x
  • FormerMember
    FormerMember
    Hi,

    I am a 29 yrs old and my dad was diagnosed with terminal lung cancer in may.He is the most prefect father.
    My dad said i should go on this web site but it has took me a few weeks to do it.
    I dont know how to get my life back on track. Just to look at him breaks my heart. Before i came on here i thought i was the only one goin through this. This is the most hardest thing i have done is to wright how i feel.

    mel .