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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    Harry Barb thanks for your love & hugs, I've just been told that mum will be having another drain fitted tomorrow morning that will enable her to come home with it in place, I think it's called a rocket.I've had a teach in with the sister on her ward and feel quite confident that I can master the mechanics of it, although I am finding it hard to master my composure when I'm with mum. She'll be coming home for palliative care with meds etc so I know we're all in for a roller coater of emotions, we did manage a laugh yesterday cos my mum has turned into a really picky eater and so yesterday (after speaking with her nurses) I re-named her Goldilocks cos her porridge was too hot then it was too cold and not to be outdone her cornflakes were too dry then they were too wet!

    I've discovered that mum was most likely exposed to asbestos some 40 years ago when she and my step father worked in a government factory - he has no wish to get a check up at the moment, he's had a lot to cope with recently with mum so maybe I wont nag him just yet to get checked (or maybe I should respect his wishes ) but I wonder whether anyone here has had experience of working in a govt area that's "crown property" and is covered by different rules because my husband is urging me to see if anybody else who worked in the same or similar workplace has mesothelioma. My husband feels this way cos his dad dad died of emphysema caused by working with hazardous products (bone ships on the docks) and we've since learnt that lots of his workmates have also died of emphysema. Apologies if I've posted this in the wrong section.

    Thanks Di
  • FormerMember
    FormerMember

    Hello again Di,

    I am not an expert on mesothelioma, but your mum will I am sure be able to claim compensation. Try these two links:

    http://www.mesothelioma.uk.com/ http://www.mesothelioma.co.uk/index.aspx
    Even if your dad worked at the same place, it doesn't mean he will automatically get the disease. My husband also worked with asbestos, for a short while. He used to come home covered in powder, but he hasn't got that. His lung cancer is secondary from the bladder. If you want input from others about working on "crown property", I would suggest you either start a new thread with Mesothelioma in title, or join one of the other threads on this cancer. You can find them by searching on Tags.

    Hope your mum is soon home with her family

    Wishing you all the best HarryBarb x x

  • FormerMember
    FormerMember

    Hello Di

    My husband also has mesothelioma. I am not sure what area you are in but we have found our local asbestos support group a great help, from the beginning to now. If you google asbestos support groups you will find one near you, or I think there is also a list of them on the mesothelioma UK website. They were brilliant in explaining benefits and claiming compensation if you need any information. If you do decide to make a claim through a solicitor the asbestos support group can also give a recommendation, and the solicitors can put out a request for other people to come forward who had worked at the same place. They did that for my husband and several people came forward who had worked on the same site all those years ago. Hope this helps and all the best to you and your family. xx

  • FormerMember
    FormerMember

    Hiya?

    I've just turned twenty years old in April, and July '08 I moved from S.Wales 300miles North from home with my boyfriend. With my family's complete support ofcourse, just because of uni and work at this moment in time.

    In March my grandfather (father's father) was admitted to hospital with bladder stones. Everything was quite routine in the treatment etc. On the final scan, to ensure all stones had been removed it showed a growth on one of his kidneys. To cut a long story short... My grandfather now has kidney cancer, and the lates information from him is he's on chemo tablets for the next 6weeks, and are not thinking of operating. So I'm a mixture of emotions, at the moment, although remaining as normal as possible?
    To add salt to the wound, my grand mother (my mother's mother) is awaiting results on her invasive bowel tests. As the surgeons beleive it may be cancerous. (Two years ago she had five cm of pre-cancerous intestine removed.)
    At the moment I'm the mature, sensitive child, ( between one older, and one younger child) for my parents. Living so far away from home, means that they can pick up the phone anytime and have a really good moan and let off steam. Which they have done. Except my father prefers not to talk about his feelings (Like me) and I'm afraid he's starting to bottle everything up. Whereas my mother prefers to explode her emotions to close friends to get through situations she's in.
    I've started to investigate both problems on the internet, as a support mechanism for my family, as well as for my wellbeing...I think!?

    Just wondered if anyone's going through a similar thing? Or just to chat really? I think... any messages would be helpfull to me.
    XX

  • FormerMember
    FormerMember

    Hi Kerys

    I'm so sorry to hear that you have two grandparents who are now ill. All I can say is be very cautious about how much research you do on the internet. We have all done it I think, and all half scared ourselves to death! The problem is that every case is different, and when we research "blind" without the benefit of having some idea what is showing in scans or medical records, we tend to hear some of the wost scenarios that are likely not going to happen to the people we know.
    I can understand that you want to be informed and know what you are dealing with. Thee is an excellent source of information attached to this site, since it joined up with cancerbackup, so I would say that is perhaps a good place to start, because it is factual, without being over dramatic. And ther are also lots of helpful sections on things like Talking to people with cancer, and Living with Cancer and different treatments. This part of the site "Share" is an excellent source of support & encouragement, because we all have questions about different things, and everyone on here understands the basic situation, because we are all dealing with cancer one way and another. Obviously different people have different experiences of various cancers. If you want to search for threads on any type you can go to tags at let hand side. Just click on Tags in green and then use the search facility.
    I know it must be very difficult living so far away, and I wish you all the best
    Love & hugs
    HarryB x x



  • FormerMember
    FormerMember
    my first post,not sure where to start,my husband just diagnosed with primary lung cancer which has spread to hiis lymph glands,no cure,do not know how to react,what to say or what to do,he is acting like he has been told he has a boil !!!! and is so calm,wish i could be as positive as him
  • FormerMember
    FormerMember

    Ha Ha. Had to smile at the "boil" bit Dillys even tho I know its not funny. But he's a bloke! When was he given the diagnosis? Men's brains work on a different time scale to womens. He needs time to assimilate this news and chew it over a bit before you will get much reaction. I appreciate you said no cure, but what palliative treatment are they giving him?
    This is a rocky road you are now travelling and you will both need lots of support. We all react differently to these things, but there is a lot of friendship, advice & support on here, so do keep posting. It might be an idea to fill in your profile and open it for others to view. Have a look at a few others to get the idea, then go to My Profile in blue lefthandside of page.
    Have a good look around the site. If you go to the Home tab at top of page you can then also get to cancerbackup part of the site, which will tell you lots of things about different types of cancer etc. Also, you could search under Tags (lhs column again)for lung and that will bring up threads of people dealing with lung cancer.

    Thoughts and prayers are with you. You are not alone

    Love & hugs

    HarryBarb x x x



  • FormerMember
    FormerMember
    thankyou harrybarb for your reply,we were only told 2 days ago,he has chemo soon to relieve his symptoms,i cant believe he is so ill as he like a new man on dexamethasone,i have started a new thread on it,hope i get a response to it .
  • FormerMember
    FormerMember
    Hello all, my mum was diagnosed just over 2 weeks ago with multiple mestases(?) to the brain. Things have been pretty awful but she has kind of come through and is (although a little forgetful) herself! She has been seen by discharge and they agree she can come home, but her prognosis is rubbish 3-5 weeks and they are looking at 1/2 hour twice daily care! She is still confused and needs much more than this, that we as a family just cant provide. She is entitled to a full care package - so an hour a day seems, worthless! We are asking for a full care plan to be discussed, at her home, where they can make a full risk assesment, and will give us, her daughters, a chance to highlight areas which might be of concern. Come on! I am so angry. They have based their care plan on my mums own answers! She is trying to be normal, independent, and they are accepting all her answers. We, her family are all concerned that something terrible will happen in the 23 hours that there will be no care! Any suggestions most welcome.
  • FormerMember
    FormerMember

    Hi Jo

    Sorry to hear about your mum's prognosis. I can fully understand your concerns. Before anyone goes home from hospital, an OT at least has to visit the home and make sure that person will be safe. They check mobility around the home. They check they can get in and out of bed safely, use the loo, the stairs, and the kitchen. If you have concerns make them known and make sure they are aware that the family are unable to provide 24 hour care. They will perhaps then suggest a nursing home, and they have to give you time to find something suitable. If your mum's prognosis is so short, time will have gone by, and if you still haven't found a suitable nursing home, maybe they will then get her in a hospice for her last couple of weeks.
    There should also be hospice at home care available, or something similar but it often depends on the area you are in.
    Hope you find a good solution
    Love & Hugs HarryB x x