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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    dear toomuchtoquickly, my heart goes out to you right now, make the most of your time together, its very important, special hugs to you from me, jackie x
  • FormerMember
    FormerMember
    Thank you, i read your profile, my mother in law was diagnosed Feb last year aswell, same age, so sorry for your loss x keep smiling xxxx
  • FormerMember
    FormerMember
    Hello,

    This is my first message. My name is Clare and we found out last Friday that my mum has incurable lung cancer. The doctors have left it at that and haven't given us any more information. I'm in pieces (mum lives next door to me. I have three children and she has been a part of my daily routine for seven years) and finding it incredibly hard not knowing what the outlook is. I'm not hear to ask or look for answers. I just need a friendly ear right now. XX
  • FormerMember
    FormerMember
    dear clare, im so sorry that you have had to come to this site, for the reason that you have, but welcome, there are many on here that will help and support you in any way they can, ive had a look at your profile, really you need to fill in a bit more, if we can get a picture of whats happened to you and your family it would be easier, im really sorry about your mum, you are welcome to read my profile it may give you some idea, what i mean, spend as much time as you possibly can with your mum, that is very important to you both, make the most of each other, be there for her, jackie x
  • FormerMember
    FormerMember

    hope all went well moomy with your daughters scan

    and good luck with the results

    xxxx

  • Thanks, Marie, we have a couple of weeks to wait now....

    Moomy

  • FormerMember
    FormerMember
    Thank you for replying to my post Jackie. I've read your profile and my heart goes out to you. I've taken your advice and have filled in my profile a little. It was difficult to do as I felt I was writing about someone else. I hope to get to know you, and hopefully others, better. There certainly seems to be some comfort in talking to others in a similar situation.

    Take care,

    Clare.

    XX
  • FormerMember
    FormerMember
    Hi, I'm new to this so bear with me if I'm doing the wrong thing.

    I had an operation to remove my oesophagus on the 5th March after it was dicovered I had eosophagal cancer. I am 49 years old and prior to this I was fit and well, I watched what I ate, went to the gym but enjoyed the odd glass of wine or two.

    My paternal grandfather died of the same condition when he was 58 years old when I was about six or seven.

    I was just wondering if there were any people out there who had been through the same experience. I am still finding food gets stuck in my throat and after I eat too much (which is miniscule) it can leaver me feeling really rough for a while. Stomach acid regurgitates at night and causes a very unpleasant taste in my mouth. Lastly my lung is still struggleing; when I sneeze and it inflates invoulantarily it can cause pain.

    I would just like to know more. The information about immediately after the operation is excellent but what about the bit between that and full recovery. I'd like to be more active, maybe even rejoin the gym but I'm not sure if it is too early and I might be pushing myself too much.

    I would be grateful to hear from anyone who can help fill me in a bit. Thanks.

    J
  • Hello, Janet, in answer to you query, yes, there are folk on here after oesophageal cancer treatment! I'm sorry you have the need to be here, but it is a good place for support and advice too....try using the 'tag' for oesophagus, on the left of your screen, in blue, it will point you to the threads for that type of cancer, do join in on one, as I'm sure you will be welcomed and helped....do keep posting....

    Moomy

  • FormerMember
    FormerMember
    hi everyone, i'm new and not sure what to do so i'm reaching out.
    my story:

    My name is john,(only child) 29, married with two kids and one on the way. A year ago around easter, my mum (48 at the time) was diagnosed with bowel cancer after suffering pains, these were later found to be caused by an abcess bursting and attaching itself to the abdominal wall. She had the operation within two months to remove a small section. I live a couple of hours away and visited her after she was getting mobile again. (she often visited me and the kids but wasn't fit enough now).
    She started chemo which made her very sick, i accompanied her to her consultant after her first three sessions and he said she wasn't showing the change they wanted and since she was so ill they would change the chemo, this meant though she would lose her hair (which my eldest, 6 found hilarious whe she seen her).
    We always kept in touch but normally she was always in and out of hospital with dehydration or other problems, which i began to find hard aswell. Around pancake day she was in (i remember as the ward complained the cook wouldn't make them pancakes) and from then on she stayed in, she kept getting told she would be out soon. They tested her and decided that the chemo wasn't working so they wouldn't treat her but sort her pain relief. The cancer had spread to her hip and lymph nodes but no further as far as i am aware. I tried to discuss the situation but she was adamant she would still have years so as far as i was concerned she would. I visited her a couple of weeks before easter with my eldest and she as weak, struggled to walk, but was her usual self. At the end of the week i called and she was high on morphine, so the next day i called, she was better but had been put into the hospice as they were short of beds. They told her she would be out in three weeks one she was mobile and pain free. On the wednesday the same she was a little high but spoke of the future. On the friday i got a call to see her within the next few days off my step dad, i later called the hospice and they said no, come now she is going fast.
    So a frantic 2 and half hour drive with family (mother in law took me) and as i turned the corner of the curtain with the nurses who were about to check her drip, i saw her looking toards me with a slight smile, her sister and husband stood there and the nurse checked her and said she had just gone. They expected her to go 5 hrs earlier but she held on for me on good friday.
    She was cremated 5 days ago, she was everything to me, my wife has been brilliant but there are times i feel so alone, i keep stopping myself from phoning her. i wish i knew more.
    Sorry for this being long but i just needed to reach out and let my feelings flow, i cry at the slightest thing and this has me in floods. I know there are others facing or have faced the same thing and i just wanted to share to be part of it especially after the care macmillan gave her, i can never thank them enough.

    thank you, rest in peace mum.