New to Share? Come and say hello!

Hi Colleen, I too am in Australia. and although the Macmillan site is based in the UK it has members all over the globe. So I trust you will be as welcomed as I was when I joined. The site is called Share because that really is its essence, you are amongst people affected by cancer either as patients, carers, friends or bereaved. Our common need is to be in contact with others who understand the evils of cancer. We share in the joys and sorrows that beset the cancer journey. I trust now you have started to relate some of the story of your Dad's illness and treatment that you will find this outlet is both a therapy and comfort knowing you are amongst those of likemind and often similar experience. My best wishes to you Charles.

Hi Charles and thankyou

I dont know why or how i found this site but i did and i spent many days reading posts from many on here and thats how i came to realise my story wasnt different to others its just i only hav really put the pieces together today!

Its funny how i have progressed from all the emotions we all go through to today wondering why my dad chose to travel this path alone , i understand he possibly didnt want usto push him into treatment , i wonder how far advanced was he? these are questions im now thinking about and today i have been so sad to think he did this alone its like another wake in the guts so to speak...why didnt he trust us and alow us to be there for him wholy...i guess i will get there its just i feel now like this is raw again , you know its funny i grieved in open for the first few months and then had to pretend as those wh havent lost dont truly understand the waves of emotions, maybe i supressed a bit too much and is why i am stil stagnat in this process , im hoping by coming here i can realy truly start to heal within with those who understand... i have sought mediums and yes one in particular was amazing things she knew were just not possible and it helped for a while knowing he is ok and im sure one day if all people say is true i will see him again..that i will have to wait for sure to know when its my time.....
i just thankyou for your reply and hope its all up from here..

xx
colleen

Where are the side awake club members? Is anyone awake?

Mum is getting worse.............................please read my profile for the latest update. Any advice on how to cope would be very much appreciated. I know this week coming is going to be very, very hard. Love, kisses & cuddles to each and everyone of you and your family. Thanks Cj xx

dear cj1972, i am so sorry that your mum is so ill, all i can say to you(by experience) is be with her as much as you can, talk to her as much as you can, even if she gets to the point where she cannot answer, she ill still be able to hear you, just try and get through together,as a family, take it in turns to sit with her, this is so hard, my thoughts are with you, please feel free to read my profile, if it helps jackie x

Hi Peggysue, thanks for your response. I'm sorry to hear about your husband, what a cruel, cruel disease. You wouldn't wish it on your worst enemy. Talking to Mum last night, really did comfort me. As I mentioned in my profile, I am scared/petrified of the coming week, as you cared for your husband, was it a difficult time (I know that's a silly thing to ask) but was it really hard. I just don't know what to expect, the palletive care nurse mentioned something about when the kidneys fail............... etc, even emailing you about it now, gives me butterflies, I'm so, so scared, but want to care for her too. My 2 brothers will too be moving back home to Mum's, I have a young family too, but am thinking to staying at Mums too (but not keep my 2 girls there) maybe take it turns with my sister who too has young children, as certain things my brothers won't be able to deal with! not sure how to work it all out, so much on board, so much to do and say. Not eating & sleeping doesn't help either does it? I do hope things get better in terms of the grieving process, do they? All the best Peggysue, I wish you well for the future - I will keep posting, as I find some kind of sanity (if that's the right word) everyone is so, so kind on this site. "NO MORE PAIN RIGHT" - that's what we want. Cj xx

dear cj, the answer to your question, yes it was hard emotionally caring for my hubby, your life is turned upside down, jackie x

Hi, I have never been on this website before or posted so here goes! My mum was diagnosed with ovarian cancer over three years ago, she has been battling ever since, she is in hospital now with bowel problems, she has told me today that the doctors have given her 2-3 weeks to live if she says no to anymore chemo. She hasn't responded to her chemo very well but they are willing to try a different one. On top of this my Dad was diagnosed on Christmas Eve 2008 with a brain tumor, not sure of the name but I know it is one of the aggressive ones, he is not coping at all! I just don't know what I have done to deserve this? I am 28, I work hard so my daughter has everything in life she needs, I have never abused her, been nasty to anyone, all I have done is tried to live my life the right way and this is what happens! On top of this I have just been told I have Brca1! I just don't know how I can even start to cope x