New to Share? Come and say hello!

FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember

    Hi Marie,

    Just wanted to say welcome to the site, but so sorry for the reason. Yes a diagnosis of cancer is very scary for anyone and I can understand your fears. This will be a difficult time for all of you, as there will probably be more tests to have done and more results to wait for, and the Waiting is horrible. But I am sure that within a few weeks he will have a treatment plan all worked out, and you and the rest of the family will be there to support & encourage him through it. Keep posting, as there is such a lot of support on here. Think about filling in your profile and opening it, maybe a short bio too, as it helps people respond, and saves you keep repeating yourself.

    All the best with Hugs x x HarryB xx

  • FormerMember
    FormerMember

    Hi my name is Gary paul I am 47 year's of age , excuse the typing as it was not do a subject i did at school , the gramma's not that much better either ..

    I was diagnosed with cancer ( melanoma ) in sept 06 , a mole on my back had turned a funny colour , this was found to be cancerious . after a small op to remove it , then a scan , i was given the all clear ,

    About a year later , lump's appeared in my groin area , these were then scanned , and they found 7 new tumour's .. ( 2 lymph noid's , 2 liver , 2 lung , and 1 in the spleen ..)

    I was given the new's in jan 08 , that i was now in stage 4 cancer . with that magic word TERMINAL...
    Although i was devastated at first i have gotten over this with a positive mental attitude .. and my wife and 3 son's , and some truly great friends and thier magnificant support ..

    I was given a a coarse of DIACARBAZINE chemotheropy.. Which to be fair had no real side affect's ,
    In fact myself and 2 good mate's decided to bike from land's end to johna groats , every mile telling a story , an achievement of a life time in anyone's book .. if there was a side affect , it was a bad case of flatulance . in some case's quite emrassing ...


    It made me reallize afterward's how strong the DIACARBAZINE was when good friend of mine was diagnosed with stomach cancer , He had the same chemo as me ,but with completely differrent effect's . he lost loads of weight and all his hair , he was told his was terminal but i believe thru true grit and determination he pulled thru , and is now in remission . so there is alway's hope ....

    My attitude is still the same, I am going to enjoy my time left on this planet however long it may be .
    My body know's there is something wrong because of all the strange pain's i get but a few pint's of good ale will sort that out .

    The reason i am on this today is to ask if any fellow sufferer , has tried or been part of a new experimental trial called AVE1642 .

    If so any comment's would be really welcome .... many thanks gary paul .....



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  • FormerMember
    FormerMember

    Hi GaryP

    Sorry to hear about your illness, but great to know you are coping so well. Welcome to the site.

    I would suggest you make a new thread for your question about the AVE1642, and put that in the title. Not everyone reads this thread as it is for newbies, so you may get a better response this way.

    The bike ride sounds fantastic! Hope you continue to do well

    Hugs HarryB x

  • FormerMember
    FormerMember
    HI MY NAME IS DEBBIE
    I WENT TO DOCS LAST YR WITH LARGE LUMP WHICH I HAVE HAD SINCE I WAS 19 YRS OLD I THOUGHT NOW AT 45 AND MY SISTER HAVING BREAST CANCER IT WAS TIME TO GET IT SORTED BUT MY DOCTORS WAS NOT CONCERNED BUT SOMETHING NIGGLED INSIDE LOL WELL 24 OF MARCH I WENT TO SEE ANOTHER DOCTOR AND IT HASNT STOPPED I START CHEMO FOR 8 MONTHS THEN IF EVERYTHING GOES TO PLAN BREAST REMOVEL WHICH IM FINE ABOUT THEN RADIATION
    MY LUMP MESSURES 6IN BY 7IN SO LADYS AND GENTS IF YOU GOT THAT NIGGLING FEELING THAT THINGS ARENT RIGHT THEN SEE SOMEONE ELSE MY HAS SPREAD TO MY UNDERARM
    I FEEL GREAT I DONT SEEM TO BE DOWN ABOUT MY CANCER JUST UPSET FOR MY NEW HUSBAND AND MY FAMILY I LOVE THEM VERY MUCH XXXX
  • FormerMember
    FormerMember
    Hi Debbie,

    I just wanted to say welcome to the site, although I wish you didn't need to be here & that I have replied to you in more detail on the Breast cancer thread..

    You may want to fill in your profile and open it for people to read, as it saves the need for you to keep explaining to people about yourself who haven't read your original posting. It is purely optional, so you don't have to if you don't want to.

    xx
  • FormerMember
    FormerMember
    hello, i am a new one too. i was diognosed with breast cancer 2year ago and it spread to my lymph nodes, i worry very much now about my 12year old son and costantly cry. i am a wheelchair user due to a spinal injury and already felt i had let him down in life. now i feel worse.
  • FormerMember
    FormerMember
    dear gina blonde, im so sorry you have had to come to this site, but glad that you have, there are lots of people here ready to give help or support, they are all good people, and ready to help, if you go to the left hand side of the page, and click on cancer tags, it will take you to the relevant place you want ie breast cancer etc, or start your own thread, and people will come to you, good luck with your search, jackie x
  • FormerMember
    FormerMember
    Hi, I am completely new to this and have never inputted onto a forum before. I found out that my Mum was diagnosed with Cancer of the Lymph Gland between Christmas and New Year. She was so positive about it and went in to have the operation to remove the infected glands from her neck. 6 weeks later she is still feeding herself through a tube. She had 5 removed and I really thought she would then be fine - she told my sister and I that she shouldn't need any further treatment after the op. Unfortunately she had a further scan in March and she told us that it had spread to her Thyroid Gland and then on to her lungs. She is going through radiotherapy every day and chemo once a week. I find that I am extremely emotional at the moment. I seem to cry at the slightest thing, at night is the worst and then feel guilty for feeling like this because its not me going through it. My mum lives 2 hours drive away with her husband and because of the op she can't talk properly at the moment so I have to try and get information over the phone from my Stepdad which is proving rather difficult. Mum doesn't want my sister and I visiting at the moment - she has always been a proud lady and doesn't want us to see her looking like she does. We both write to her in the hope she will stop shutting us out but although I can talk to my Husband, my sister is not coping and not talking to her partner about it. I am trying to be strong for her and have told her to contact Macmillan for support. Has anyone been through the same thing? Any advise would be greatly appreciated. Thanks in advance
    My thoughts are with everyone dealing with this horrible illness.
  • FormerMember
    FormerMember

    Jess

    I am so sorry to hear about your mum's illness. Please never feel guilty about crying or feeling down. You wouldn't be normal if you didn't! This is your mum who is ill, and we all love our mums. I'm very glad that you can talk to your husband about it. Your sister also needs to talk to someone as you have already realised. Perhaps to a certain extent you can support one another, but it would probably do her good to talk to someone else as well. If not someone at Macmillan, is there a close friend or another family member she an talk to? As for keeping in touch with your mum..does she use a computer? Can you chat, email or message that way? Or can you text her daily? She probably doesn't want to see you because she doesn't want to upset or worry you as much as anything. I really do feel for you, and hope you can sort something out. There are lots of people to chat to on here, have a good browse around the site, and feel free to join other threads or groups, or request people as friends, so you get the support you need. Encourage your sis to come on and use the site too, and even your mum if she will do so.

    Love HarryBarb with Big HUGS x x

  • FormerMember
    FormerMember
    Hi Everyone

    Not sure where to go to post new to here not realy sure why or how i found this place but after reading a few posts i know im in the right place just unsure where to post?
    Colleen