Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.
We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.
Hello
I am new I have replied to some correspondence but I really dont know what I am doing!!!!!
My husband died on June 26th after a late diagnosis of stomach cancer which had spread to his liver and lymp nodes and lungs we had 15 days from diagnosis to his death which was a horrible roller coaster for me and our two daughters and son. He had attended the GPs for two years before this diagnosis but they hadn't picked on it which makes me really angry and 5 months later I still feel angry we had little help from the consultant who just seemed to want to get him out of the way home to die, we wanted home and although our local cottage hospital was excellant we had to push to get him home where he wanted to be and to die which he did after just three days at home. The district nurses were excellent but I now feel angry that I had no discussions on what kind of stomach cancer it was or what the prognosis was, know your enemy, and had to push to organize the equipment needed to get him home maybe this was more difficult because we live in Highland Perthshire, but were you live should not make any difference to the provisions made for home care.. When you have no experience of this and your thrown in at the deep end it is really desperate to stay afloat and you are trying to stay strong to help your loved one who is fully aware they are dying. Hey its five months now but I am struggling to stay on top especially wih Christmas and New Year looming . I feel like shutting myself away yet I can't because of family. Has anyone else had similar late diagnosis, it was hideous how has everyone else managed with equipment provision for taking their loved ones home.
any discussion at all would help I am hoping I can do something up here to help anyone like us with such a dreafull diagnosis.
love to here from anyone
Yvonne
Hi to all of you who feel that they didn't get the right diagnosis or the right help, have you noticed the board "Have your say, Improve Cancer Care". Look under Share left hand side near top of page, half way down in blue. If you talk about your experience on there it may go some way to improving care in the future.
Thats not to say don't post here by the way! Its just an added thing you can do. My thoughts & prayers go out to all of you.
Becky, have you tried looking under Tags? left hand side again. If you put a search in for "Ovarian" you may come up with a thread where there are others going through the same journey who can help you.
Just a suggestion for all, would you like to fill in a profile and open it to view? Its not compulsory, but some people tend to respond better to an open profile, and it saves keep repeating yourself all the time. Just put as much or as little as you like. Have a look at others if it helps.
Sending love & hugs x x x x x
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