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FormerMember over 16 years ago

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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 15 years ago

sorry everyone i seem to have posted the same thing several times but they didnt seem to be working so i had to keep writing and then they all appeared together,. sorry

FormerMember over 15 years ago

sorry everyone i seem to have posted the same thing several times but they didnt seem to be working so i had to keep writing and then they all appeared together,. sorry

FormerMember over 15 years ago

i give up

FormerMember over 15 years ago

Hi Sorry to hear what your going through and know how you feel. Think this is the worst time waiting on results Once you know what your dealing with does help and once treatment starts you will feel more in control (well I did) There are a lot of us here going through the same thing. Some dont need chemo or radio so finger crossed you wont. If you do its not as bad as you imagine I was not to bad when I was having the chemo Just had to take things at a slower pace and did go to work all the way through apart from the odd day off. Also was able to have a glass of wine or 10 lol while having the treatment. If you want to chat you can always pm me and I will answer any questions you want to ask. Keep strong and try to be as positive as you can.

Take care

Lorraine xxx

FormerMember over 15 years ago

hi im all new to this.i got told of a friend bout this website. my dad found out last july he had cancer on his spine..he had radiotherapy had the cancer wasnt that bad. he got out of hospital bout august time. and from ther he was always ill,complaining of a bad neck and bad hip, he cud hardlys walk. but a day after new year he got rushed in2 hospital becoz he cudnt move his neck and everytime he moved it he cud hear crunching noises. they did some tests and we found out that his cancer has come back, but has spread to his neck,hip,ribs and further up his spine. so its all bone cancer.hes in so much pain,he started his chemo treatment a week ago, and hes also having radiotherapy 2 reduce the pain.he was doin fine,coping well,on the other hand the fmaily was distraught. but for the past few days hes turned realy bad,hes always angry,shoutin at every1,he was that angry the other night he upset all the family and we had 2 leave him alone. he keeps tellin my lil sister not 2 go and see him nd he even sent my mam home.i dont understand why hes been like this. were tryin 2 be ther 4 him, but hes pushin us away. my mam thinks hes giving up the fight. but he cant..i need my dad,hes my hero in life.what can we do or say 2 tell him 2 keep fighting.im so upset everyday, i never leave the house,i dont see my friends becoz im so depresed, i cant cope.im constantly in tears. i dont know what to do or say anymore. please help.x

FormerMember over 15 years ago

Hi, Im a newbie and have joined for info and support as my close friend has stomach cancer? I think its in her pancreas or gallbladder fro0m what i can gather. She has just come out of hospital where she was recovering from jaundice. She also had her lungs drained and had a blood transfsuion and also had a stent fitted. She looks well at the moment but is constanatly out of breath and is very very weak. Has anyone got any advice on what stage this may be at. Chemo is no longer an option for her. any help would be kindly appreciated.

Many Thanks
Mare 70

FormerMember over 15 years ago

Emma1989

I'm so sorry to hear about your dad's illness. I know your whole family must be in shock at this latest news. The way he is behaving is not uncommon. He is angry that he has this disease, and he is frustrated becuse he can do so little about it, so he lashes out at his nearest and dearest. I'm sure he will gradually calm down a bit, although you will all need to tread carefully. Firstly, has he been assigned a Macillan nurse? If not get his GP to assign him and then he/she will be your biggest source of help. They can sort out his medication so that he isn't in as much pain. I would like to say, so that he isn't in any pain, but experience has told me that with bone cancer its not easy to get rid of it completely.
Think about filling in your profile and opening it to view. It does help others understand your problems, and be more able to respond, and it saves you keep repeating yourself on new posts.

If your dad uses a computer, it may be good to tell him about this site, so that he can talk to other patients. He also needs someone to talk to, as this is very difficult for him. A Mac nurse can probably help him get some day care & some counselling, and maybe some complementary therapies that will help him relax.

If you want to talk more, you are welcome to click on my profile and request me as friend. Or you cn have a look around the site, and click on someone elses profile nd request them, if you think you will be comfortable with them.

Keep posting, It really does help to off load on here, and people are very kind

Love & hugs HarryB x x x

FormerMember over 15 years ago

Hello Mare70

I'm sorry to hear about your friend. I'm afraid no-one can really tell you what stage your friend is at, only her oncologist can do that, as only he has the knowledge. However, if chemo is no longer an option, she has already had blood and her lungs drained...it looks as if it is rather advanced.

Visit her as often as you can, do whatever you can to help her in practical ways, and just be there for her to talk to. The worst thing anyone can do I think, is to stay away because they dont know what to do or say. There is a section in cancerbackup that you may find useful.

http://www.cancerbackup.org.uk/Resourcessupport/Ifsomeoneelsehascancer/Talkingtosomeonewithcancer
Best wishes HarryB x

FormerMember over 15 years ago

Hello, I'm new to this site and feel a bit of a fraud for coming on here as I don't actually have cancer now. But I was hoping someone could provide me with a bit of information and support?? I had skin cancer three years ago and had a cone biopsy to remove pre-cancerous cells two years ago and am due to undergo the same tratment again for medium dyskariosis shortly. I have a chronic condition, the treatment for which puts me at high risk of certain types of cancer and have also had two breast lumps removed in the past (thankfully benign). I was very lucky with the skin cancer as I noticed the changes in my mole almost immediately and although I was dismissed by a number of doctors, I kept asking for another opinion (they removed the mole to shut me up, basically and it turned out to be malignant melanoma but VERY early stages, so I only needed surgery).
However, I have been very anaemic for the last 7 months despite quite aggressive treatment and I was eventually referred for a colonoscopy. I had a polyp removed during the colonoscopy and got the results yesterday. Apparently there are some cell changes in the polyp which the Gastro Consultant is concerned about- there was more than one polyp in my bowel and they feel that this is where the blood loss and resulting anaemia has occurred. Given my previous history and the additional problem that I am at high risk of some cancers, could someone with experience of this be able to give me some stats as to the liklihood of these cell changes becoming malignant? My doctor is going to write to the Gastro consultant to find out what they want to do next, but was unable to offer me any idea of what would happen, what, if any, further tests there would be, what percent of these cell changes result in malignancies...etc etc
I'm trying not to worry about it, because, as my mum rightly said, at least its been picked up on early etc etc....but that hasn't stopped me having a sleepless night.....and from experience, I could be waiting for a while for any further consultant appointment or whatever....in the meantime, I'm just left to wonder...

Any help or info would be gratefully received as I couldn't find anything about Polyps on here. Thank you in anticipation.

FormerMember over 15 years ago

Hi Sleepless and welcome to the site, but sorry for your reason for being here. I know its very difficult waiting for any sorts of results, and I can understand your worries. However only your specialist can really give you any realistic answers, because only they know your medical history and conditions. Not all polyps become cancerous that I can say, because both my father & his sister were prone to these and never developed cancer.

I appreciate how difficult it is Not to worry, but you have to find a way to control this, so you might find counselling will help you. You can ask your GP to refer you, or perhaps contact Macmillan and ask them. You need to get on and enjoy your life as it is, rather than have this constant worry, as stress only increases your risk of cancer. I know its difficult, I really do, which is why I think counselling might help.

Is there a society or charity linked with your chronic condition that could offer further advise that may help you?
I wish you all the best for the future, take life a day at a time and live in the present. Keep posting on here if you feel you need this kind of support. You may want to start your own thread, in case there is someone on here who has been through a similar situation.

Love & Hugs HarryB x x

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