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FormerMember over 16 years ago

854 replies
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 15 years ago

Hello Hugh Gunn
I'm very sorry about your family member - unfortunately I don't have any experience of glioblastoma - I would suggest that you use the "tags" facility (in blue on the left of the page) so that you can find threads that relate to this type of cancer. There is already a tag there actually for glioblastoma so I'm sure there will be people who can give you personal help and advice. I wish you and your family well. Judy xx

FormerMember over 15 years ago

hi all just to say thanks for your kind words

i went to my nans yesterday the update letter had arrived she said i could read it the only upsetting part about it was admitting the cancer is winning its fight and spreading so time is of the most important thing in the world right now so we decided to cancel our easter holiday and spend the money on the biggest birthday party i can mannage for her my children are helping organise this aswell the mac nurses come today to see her she has swollen feet there like balloons no ankles they say this is through the steroids so she might have to stop them for a while i presume.I didnt sleep very well last night i remember dreaming cancer was a person and i popped them one on the nose and said how dare they do this to famillys i think the whole thing is driving me crazy

FormerMember over 15 years ago

Hi Hugh Gunn.

Try the thread We Talk Brain Tumours. Lots of us over there. Great advice and friendship on the way.

Jenny W

FormerMember over 15 years ago

Hi Hugh Gunn,
Jayceeh allerted us to your posting.
Like JennyW, I post on "The We Talk Brain Tumours" site.
Pop over and ask any questions you wish, there are folks there who are at all stages of the "journey".
You will find the help, support, advice and friendship to assist you and yours.
I hope to see you over there.
Best wishes,
Martyn

FormerMember over 15 years ago

Hi

My dad has been told he has a inoprable multiform stage 4 GBM brain tumor a week ago... he took a sezure when we were on holiday visiting family and he was taken into hospital after a week he got out and we were waiting on his MRI scan but we were told they thought it might just have been the heat or dehidration that caused the sezure, on this info my sisters and I got on out flight home and my dad stayed on with my family that stay in OZ as we never expected it to be brain tumor...

I have five sisters and we are all devastated as he has 2 tumors and they cannot operate on him so they are starting radiotherapy and chemotherapy next week for 6 weeks... we dont know what to do or expect as he is at the other side of the world with his parents and family but his six daughters are all over here.... the family in OZ say their is no point going over just now but i am scared we miss out in quality time with him as they have only gave him a maximum of 1yr but i have been reading info that the average is about 7months.....

can any one tell us what will happen from now on in???? i dont understand it all..... how long will he be ok?? how bad will he get?? how soon will he start to get not well???

Should we go back over???

please anyone give me advice....

FormerMember over 15 years ago

Hi Leanne

I am so sorry to hear about your dad's illness. You must all be devastated and still in shock I should think. This all being made much worse by the fact he is a very long way from home. My heart goes out to you all. I know nothing of brain tumours, but there are a lot of people on here who do, and I hope someone will soon spot your post. They may not though because of where it is, so have a look down the list of topics and you will find one called We Talk Brain Tumours.
If you go to the last page then Post reply at the bottom, and cut and paste your first post on there, I am sure you will get lots of replies.
If you dont hear from anyone today, try starting a new thread.
All the best to all your family
Love & hugs
HarryB x x x

FormerMember over 15 years ago

hello everyone
i found a lump on new years day, i had my operation last thursday just have to wait on results to see what treatment i will be having. i am feeling ok but like everyone have my bad moments, have great support from my husband and children and my friends but its different when you can talk to someone who is actually going through what you are too.

FormerMember over 15 years ago

hello everyone
i found a lump on new years day, i had my operation last thursday just have to wait on results to see what treatment i will be having. i am feeling ok but like everyone have my bad moments, have great support from my husband and children and my friends but its different when you can talk to someone who is actually going through what you are too.

FormerMember over 15 years ago

hello everyone
i found a lump on new years day, i had my operation last thursday just have to wait on results to see what treatment i will be having. i am feeling ok but like everyone have my bad moments, have great support from my husband and children and my friends but its different when you can talk to someone who is actually going through what you are too.

FormerMember over 15 years ago

hi everyone. i have had a cancerous lump removed from my breast. now i am waiting for the pathology report to see what treatment i will need. 10 days of hell. oh well it has to be done. glad to meet you all.

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