My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lesley, sorry to read about your dad, he is having a time of it!! Hopefully he will be feeling much better soon, Vegas wal put some photos on so that we can see them. Hope you enjoyed your fish supper
Carrie, glad to hear that you got the gas certificate sorted, I have my fingers crossed for you both and you are in my prayers hopefully B will be home with you tomorrow.
Emma, didnt know Mathew had all these side effects now and he still is working what a guy, and you too all this in your head and you were there for me last night thank you very much. xx
Debbie, hope all the preparations for next week are coming along ok.
Izzy, Diane, Greentree, Jay, Joan, Becca,Diane, Lisa, CH and everyone else thinking of you all, off to get some housework down now.
Jon is not eating very much and struggles with drinks... think there is a problem with his swallow and remembering how... but he manages ice cream so I have ordered lots and it always was his favorite.
Carrie and Emma I love your wedding pictures and they have inspired me. Fingers crossed your man comes home today.
Joan, Becca,Diane, Lisa, Greentree, Gayle, Izzy sending you positive thoughts and hugs xx
I changed my profile picture as you ladies have got me thinking about our wedding last August and I have decided that when I can't connect to Jon as he is so sleepy and drifts lots that I can put the video on and I can see us on our special day and him looking so well and happy even though it was only 5 mths after his operation.
Can you share more of your stories, ie weddings or 1st dates or special stories as it gives a bigger picture than just the moment now... don't feel you have to but I would love to know... if it feels like you can.
I will share mine......... Jon had been a little unsure of us at the beginning as I had 2 children and had been separated from my ex. So I thought he was not interested/didn't fancy me, when I asked him he didn't give a straight answer... so I distanced myself and tried to move on (Jon calls it the week from hell) but it gave him time to think (and miss me a bit).... we then went out for a meal as friends and when he tried to pay I said "I don't let people who do fancy me pay for my meals.. we can go 50-50"
He was quiet all the way back and eventually turned to me and said "I do love your company and think you great can we start again"
Hooray the world became a better place and the sunshine began...
Had such a great evening yesterday, I want to share it with you. After work, I went to my parents, to help my mom for the evening..I walked in, and sat down in the living room next to my dad. He looked at me and smiled really big. He reached out for my hand, so I took his hand in mind, apologizing to him that my hand was cold, just coming in from outside. He replied clear as a bell "oh boy, I say it is!"
First time he has spoken other than Yes and No (and that was sporatically) in over a week! He was able to hold his head up better than he had in a few days...was more alert. For dinner he finished off his entire Ensure shake (with Chocolate ice cream added). Granted, we still had to feed it to him, but he ate it all! We even sprinkled some finely ground up cookie crumbs on the top for a treat.
I know that today might not be that way...but was sure a treat for me and my mom last night. I have heard someone on here mention the "bounce".. what is that?
Evening all! Carrie - any news your end of B's home coming? Told you we'd start a trend!! x
Gayle - always got an ear to listen you know that - make sure you contact me anytime you need to - & I mean that - hope today has been a little better? xxxxxx
Jay fab pics & what a lovely story - cheered me up! hope your having an ok evening too x
Lisa - fantastic to hear - no idea what bounce is though sorry! x
Lesley - hows your dad? get them wedding pics up intrigued now!!!
Well to bore you all matthew & I met when I was 18 - that was 18 years ago - leave you to do the maths. i was working in a pub & at college training to be a chef - we hit it off & flirted over the bar - he gave me a lift home from work and the rest is history as they say! On our 1st official date though we sat in a restaurant and he told me all the things he use to get up to with is mates - he's lucky I didnt run a mile - lets just say he was expelled from most schools in the area & was a bit of a naughty boy! We moved in together a year after meeting, got engaged 2 years later and only got married in 2006! 18 years on & 2 kids later we are still just as happy - the BT hasnt pulled us apart its changed our relationship but in my eyes for the better to some degree - we live for the now - in fact he has become more romantic in the last year! got a gorgeous eternity ring for our wedding anniversary on tuesday and he got it himself with no help which makes it even more special!
anyway been at hospital today - Matthews bloods have come back up which is a relief - so we carry on - they arent worried about his appetite as he hasnt actually lost any weight (I reakon he stuffs his face with biscuits when I go to bed!!!!) his leg pains should stop now they have reduced the Dex, the tummy touble should stop too now as they have given us more meds for it, the only thing they can do much about it the hairs on his legs falling out but that doesnt worry him oh & the fact that his hair is going white! His stubble is white now already & when the ward sister & I were joking about it today she looked at his eyebrows and his hair and said yep iots going white - think matthew thinks we were winding him up - but time will tell - its an amazing ward - like a family - its all first name terms and they know who you are immediately.
Anyway off to nurse my eldest she fell over in the garden earlier and landed on her face so she is in pain & will have some wonderful bruises in the morning on her legs too!
Anyone that wants to sponser my brother in law for this cycle from lands end or wants more information go to www.justgiving.com/rmhoakward to those of you who have been amazingly generous THANK YOU xxxxxx
Good evening all, Lisa, bounce is something that we see a lot of with bt's on these threads. Someone seems to be getting worse and worse, then suddenly seem to perk up and get a lot better. Seems to happen quite often judging from what people say on these threads.
And I can't resist joining in stories of how we met. B and I met 25 years ago and I was working in the UK branch of a Dutch company and B was in the HQ here in Holland. The company had a then very sophisticated computer system - remember it was 1984 - and there was a chat facility similar to facebook. And we got chatting and ... well I moved here in 1989. I'm so lucky because he really is the best and only one for me. My own fairy tale; if he is ill, I am ill. Sorry if that sounds soppy.
Hi to everyone this is a real quicky. Nice to read lots of good news and wow dont you all look beautiful on your special days I loved looking at those lovely wedding photos.Me and Dad on my weddingday is on my profile but I dont know how to enlarge it sorry carrie or upload any more??? I met my lovely husband 7yrs ago on holiday in Turkey with my 4yr old from my ex patner(had affair whilst pregnant!!)we swapped numbers and agreed to visit each others cities I lived in London he was from Munich.So cut along story short 2 yrs of visiting every other weekend he prposed I said I would think about it 2 years later he moved to Sheffield and May 4th last yr we got married in a lovely hotel.Dad said it was the best wedding hed ever been too lots of lovely memories..... Wishing everyone a peaceful night with their loved ones Debbie
Jay, Carrie, CH, Emma, Debbie....great stories girls, its always so intruiging to know how people met....
CH, not soppy at all, just luverly, yours & B's love story always shines through!! Debbie - i tried to click on your photo to enlarge it but couldnt - doh - i do love a wedding photo!
Well me and Paul met in Jan 2000, I had just moved out of the home I shared with my ex-partner (had been with him 5 years).....then met Paul in a nightclub 2 weeks later (rebound? not at all!)....we had seen each other at a mutual friends wedding 6 months before and as soon as i clapped eyes on him i thought he was hot!!...but I was with my then partner and he with his. Anyway, when we met in the club we didnt initially realise we had seen each other before...until I mentioned our mutual friends name and he said "were you the girl with the pink dress on" and i said "yes, dont tell me you were the guy with the blue kilt on?" so it was fate!........the rest as they say is history!!! We got engaged in Paris on my 30th birthday and married 6 months later in Vegas. My dad gave me away in Vegas so those are the most treasured memories ever.
Gayle - hope your okay today??
Emma - How strange that Matthews hair has gone white, dont think you'll mind too much though eh...just think Sean Connery!
Julie - If your reading, hope Stephen is doing better?
Lisa - sorry, i mustve missed your first post! Hello to you. Mustve been great for you and your mum to hear your dad speak - these small things mean a million dont they?
Carrie - is your hubby home yet - Surely must be soon?
Hope everyone else is bearing up.
Well my mum is here again tonight! My dad is getting a blood transfusion tonight as apparantly the injections he has been getting into his stomach to thin the blood has been far too high a dosage. Nothing is every easy eh. He was so shattered he could hardly speak....no wonder he's so tired if his blood has been diluted to the max by mistake! Anyway, he was in fine spirits and knowing the hospital...may be home tomorrow if they have everything under control, still no concrete answer as to why he is all black up his legs and black but its probably all linked i suppose.
Just watched Jade's wedding on tv, Martin and I cried allthe way through so sad, those poor little boys, her mother and grandparents and poor Jade its just so sad!!
Well after reading everyones soppy romantic stories........ Martin and I..... I was working as a bar manager at a holiday park where Martin had a holiday home we both were in relationships at the time but the spark was there immediately, we were good friends for 3 years, then in 1998 both our previous relationships ended and we finally hooked up, got engaged 2 months later moved in together, had loads of lovely exciting times together, Martin is sitting reading as I write and asked to tell you all about our first holiday together in Jamaica we had been together for 8 months and it was fantastic, just Martin and I together alone for 2 weeks of pure bliss, 9 months later came along Martine to complete our family, along with Martins daughter Amanda to his previous relationship, we had been together for nearly 11 years before we got married last year on Martines 9th birthday. This illness has made our relationship so much stronger (although during r/t and just after it did not as you know) now Martin and I are so much in love and he is my true soulmate now and forever.
